Allies Voice: Hundreds of thousands squandered from JDRF

The New York Times reported an internal audit at the Juvenile Diabetes Research Foundation (JDRF) discovered two men had squandered hundreds of thousands of dollars from the non-profit organization.

The two men responsible, Jonathan Stenger, national director, and Jason Brown, national manager, were dismissed late last year. Here are a few choice words for these men, in light of their insulting embezzlement. Families, friends and loved ones raised these funds to research and cure Type 1 diabetes. Shame on you! Or am I missing the Robinhood moral of this murky story? Please let these men know how you feel about their cavalier misuse of funds. Do they not know what life with diabetes is like?

There's no excuse. In fact, I cannot strectch my imagination far enough to forgive these men for their irreverent and smug use of fundraising dollars. Mr. Stenger and Mr. Brown had submitted counterfeit recepeits into the computer system of JDRF to protect their illicit sweepstakes - for whatever in the world they were doing.

Thankfully a JDRF internal audit discovered their inappropriate indulgence - unfortunately, the discovery came five years after it all began.

In the past I haven't known enough about the people inside at JDRF. However, after attending the meeting last month, and getting to know a few of the hard working people at the organization, it upsets me terribly to learn that an organization with good intentions has been victimized by the actions of bad people.

Mr. Stenger and Mr. Brown have a lot of explaining to do. Then again, no amount of explaining (or funding) has cured Type 1 diabetes. Will this be any different?

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  • 2/28/2008 3:59 PM Jaimie wrote:
    what a shame!!!!!
    Reply to this
    1. 3/5/2008 10:48 AM bird54 wrote:
      Article 11 & 12 -- BROWN & STENGER -- still PRESUMED INNOCENT or always REASONABLE DOUBT?

      Hi Jamie, Following much considered thought on this matter I came to the conclusion that there well be a 'Robin Hood' issue to this press story -- as suggested above by Allie.

      Please read my comment about 'Article 12' which also includes 2 video links explaining / relevant to Article 11 --
      http://www.alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-870661

      "-- Getting fired, unfortunately, can happen to the best of us. It can happen even when it's not your fault. There could be a personality conflict between yourself and your supervisor. -- Experts say that at least 250,000 workers are illegally or unjustly fired each year and that's not counting those that were justifiably terminated. --"
      http://jobsearch.about.com/od/salary/a/fired.htm

      In my opinion It is far too early to make a reasonable judgment other than to accept the fact there is an ongoing investigation which BROWN & STENGER have been associated with following 'questionable allegations via email'.
      ?
      Reply to this
  • 2/28/2008 5:28 PM cashpotato wrote:
    Dear Mr. Stenger and Mr. Brown,

    Congratulations on defrauding the public out of hundreds of thousands of dollars! You are truly a special breed of greedy despicable human beings.

    Your accomplishments have earned you a paid vacation courtesy of the State of New York. Your new vacation home will be at Rikers Island. Your accommodations will include room and board and of course a most colorful roommate who will be more than happy to do to you what you have done to JDRF.

    We look forward to seeing you very soon.

    Sincerely,

    The warden, staff and inmates at Rikers Island
    Reply to this
    1. 2/29/2008 11:52 AM Allie Beatty wrote:
      Well said, cashpotato! I’ll see if I can arrange a greeting card with your eloquent spin for the greedy bastards, upon their arrival. Best, Allie
      Reply to this
  • 2/28/2008 9:24 PM Scott wrote:
    To some extent, this must be a lesson for JDRF (or any other charity) which is that as the organization has grown to fund close to $1 billion annually in research, it also becomes a magnet for this kind of fraud. I should note that it took JDRF's own internal audits several years to uncover this. No charity can rely on goodwill to protect themselves from scum like this, and we need to ensure that routine fraud security protocols are in place to uncover things like these before they become this large.

    I certainly hope Jonathan Stenger and Jason Brown are "welcomed" to their new home in prison -- they certainly deserve it!
    Reply to this
    1. 3/5/2008 8:07 AM Nicholas Dynes Gracey wrote:
      .
      www.tinyurl.com/2w7gp9
      .
      Vernon Howard's
      SECRETS OF LIFE (R)

      **********************************************************************


      "There is a section in every man which appreciates the truth, so our task is to release it fully."

      Inspire Yourself, p. 54


      Go to the Bookstore link at http://www.anewlife.org/html/home.html


      **********************************************************************

      Visit the SECRETS OF LIFE Archives of Vernon Howard quotes:
      http://archive.mail-list.com/secretsoflife

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      Share Vernon Howard's SECRETS OF LIFE with a friend!
      Forward this message to those you know who are also searching
      for the answers to life, or copy a past quote from the archives
      to e-mail them.

      **********************************************************************
      .
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  • 2/29/2008 4:38 AM Sarah wrote:
    JDRF deserves another lawsuit...from us, the Type 1 diabetic donors.

    All recent Type 1 diabetes breakthroughs have come from sources that have had no help from JDRF. In some cases, it appears as though JDRF has even HAMPERED valuable breakthroughs.

    Such as the case with Dr. Faustman. Instead of funding her groundbreaking work, they discredited her, and then wasted millions to "replicate" her study, and then declared it a failure because the "regenerated cells did not seem to come from the spleen".

    The mice were cured of their long-standing autoimmune diabetes, which was the desired outcome of the study. Where the cells came from should be an afterthought.

    The Substance P breakthrough at Sick Kids Hospital, LCT, Faustman, Alba's AT-1001 for T1 prevention...all major breakthroughs...nothing to do with JDRF. So where DID our money go? JDRF has done little to nothing to improve the lives of those with T1 diabetes.

    They partner with Big Pharma, a conflict of interest, they waste money advertising to raise money, they fund pointless stem cell government campaigns, they secretly also do some T2 research on the side with donors money for T1 research (T2 is where all the money is)....

    JDRF is the new ENRON...I suspect there is more mismanagement going on than just this...

    Now, if we can only prove that JDRF had supporting evidence that c-peptide could reduce complications (complication treatment is one of their goals), and they suppressed this or did not pursue it, then I think we have a case. it would be nice if some of those will law degrees could help me out here! I truly believe what is done to Type 1 diabetics is an atrocity. It has been known that C-peptide (endogenous insulin secretion) may be linked to reduced complications for some time now..in fact, since the late 70's! JDRF should have been banging down these researcher's doors offering funding to solve this puzzle.

    http://www.ncbi.nlm.nih.gov/pubmed/359394?ordinalpos=19&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

    http://www.ncbi.nlm.nih.gov/pubmed/7001837?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstractPlusDrugs1

    Allie, I think I already know your thoughts on this, and thank you for the great post.
    Reply to this
    1. 3/5/2008 10:47 AM bird54 wrote:
      Surely the JDRF should be advocating beta cell preservation and intermittent C-peptide testing to monitor diabetics' progress?
      http://www.diabeteshealth.com/read/2000/09/01/2020.html

      Dean's reference (http://www.cmaj.ca/cgi/reprint/158/3/292.pdf) is without ANY mention of C-peptide testing. Dean could maybe have discriminated type 1 or type 2 by head shape (http://en.wikipedia.org/wiki/Craniology) or skin color (http://en.wikipedia.org/wiki/Caucasian_race) or DNA (http://en.wikipedia.org/wiki/Genetics) as she was trying to work out the difference between type 1 and type 2 -- but surely she should have adopted the C-peptide test. The Dean article says -- "It took me quite a while to realize that this was not type 1 diabetes because it was appearing in such a young population." Dean's reference refers to her comments in the 1980's. The C-peptide test was available since 1972.
      http://www.diabeteshealth.com/read/2008/01/03/5612.html
      Reply to this
  • 2/29/2008 7:58 AM Melody wrote:
    Sara--

    You pretty well covered the JDRF (and I certainly agree with your points). The ADA is cut from the same cloth. Their mission statement reads: "to prevent and cure diabetes and to improve the lives of all people affected by diabetes." I receive numerous solicitations from them with their "a nickel can make a difference" campaign. I used to toss them, but now take the time to return the solicitation--along with a letter--letting them know how they fail us. Much like the characters in Orwell's ANIMAL FARM, these quasi-charitable organizations have become pigs. (My latest response below)

    To Whom It May Concern:

    I am returning your nickel and want you to remove my name from your mailing list. Please consider that if you had saved the bulk-mailing cost for this letter, you would have had a few more nickels to “find a cure for diabetes.”

    In fact, any group that has done such a poor job of finding a cure for diabetes over the many past decades should probably cease operation. At the present time, you are nothing more than a “shill” for the pharmaceutical industry and ancillary businesses that prey on the diabetic population. Your emphasis on “education” is also nothing more than a ruse. All you really do is “educate” diabetics to patronize your corporate sponsors.

    The enclosed letter is only your latest attempt to fraudulently elicit contributions from me. I will consider any further contact by you as harassment and proof that your charitable efforts are akin to fraud/false claims and specifically target vulnerable individuals like myself who has been diabetic for over 50 years.

    What gives you the right to harass me, use my disease as a tool for extortion, and accept money in my behalf from gullible people and corporate sponsors when you have no intention of ever finding a cure.
    Reply to this
    1. 2/29/2008 12:08 PM Sarah wrote:
      Melody-Love it! It's about time someone said what most are thinking. We've been taught to be "politically correct" for so long now that nothing ever changes.

      I do have to say that the CANADIAN Diabetes Association actually has been doing a lot of Type 1 research/advocacy/awareness work lately. And let's just say I also spoke my mind a little while back...

      The CDA actually cares a lot about T1's. They have some really good people up top who really care. I wish the ADA would take some notes.

      I have heard horror stories about the ADA and Diabetes Australia (BAD!)...and I believe them. http://www.realitycheck.org.au, an Aussie site for T1's, has some stories that make my blood boil.

      I don't know about Diabetes UK. I have a feeling that the ADA is the worst. The whole infrastructure of the US is in bed with Big Pharma. They have a symbiotic relationship, and it's going nowhere good for diabetics fast.

      That was a pretty awesome letter.
      Reply to this
    2. 3/2/2008 4:15 PM None Given wrote:
      Word.
      Reply to this
  • 2/29/2008 8:32 AM Nicholas Dynes Gracey wrote:
    .
    BROWN & STENGER are INNOCENT until a Court decides if suggestion of BROWN & STENGER 'Robin Hood' {www.tinyurl.com/3xcgy7} support for revolutionary CURE for T1A diabetes ... unapproved JDRF ... is actually TRUE ?

    Why were They fired c/o 'email rumor'(?) OR were BROWN & STENGER opposed, in good conscience, to the ongoing JDRF advice, since 2005(?), to deliberately 'OVER-dose' T1 Diabetics on Non-Human Insulin "NHI" to 'vaccinate-away'
    {www.tinyurl.com/3bqcm9} any remaining natural Beta-Cell Insulin & C-peptide SECRETION ?


    BROWN & STENGER 'Defendants Evidence' ...

    > 0905 www.tinyurl.com/2d6d9s {JDRF 'advice' ~ "...Even though you may not need insulin, some doctors prefer that you take small doses of insulin daily throughout the honeymoon period..." = MINIMIZES natural BCI & BCC-peptide SECRETION}

    > 0180 www.tinyurl.com/3xtff9 {T Deckert ~ Good guidance of T1A = more natural BCI & BCC-peptide SECRETION}

    > 0178 www.tinyurl.com/2krkv3 {T Deckert ~ MINIMIZING Non-Human INSULIN dosage = MAXIMIZES natural BCI & BCC-peptide SECRETION}



    HOW to MEASURE how much protective GLUCOSE INSULIN RESISTANCE "GIR" is available to HELP reduce RELATIVE HYPOglycemia Distress "RHOD" and thereby encourage natural Beta-Cell Insulin "BCI" production / Beta-Cell C-peptide "BCC" production / Beta-Cell reactivation/regeneration?


    > 0208 www.tinyurl.com/2vygps {Sonia.Caprio@yale.edu ~ methodology of measuring GIR which increases the metabolic FITNESS of a Person to help supply glucose fuel to insulin-INDependent tissues including the HEART}

    > 0907 www.tinyurl.com/2ah8ek {Austin Larson @ www.tinyurl.com/2ov7dq ~ Big / big hearted Humans adaptively evolve with increased GIR to help supply glucose fuel to insulin-INDependent tissues; and also adapt with increased growth of blood vessels in organs such as the EYES & HEART to help improve the efficiency of supply of blood borne nutrients & oxygen EG bigger HEARTS help pump more blood with less beats per minute}.


    .
    …Warm thanks & Adrenalin Love
    Nick Gracey, BSc(Hons) Medical Biochemistry, Birmingham University, UK, WATerian (C) FRI.29.FEB.2008 @ 13:23hrs c/o www.LoveDiabetes.cOM & www.HYPO-thesis.cOM
    .
    AdrenaLINE... www.1MealPerDay.cOM ..."Lovingly-I-Fast-Every-23hrs-45mins-OrMore"
    .
    Reply to this
    1. 2/29/2008 12:13 PM Allie Beatty wrote:
      Nick, I’m confused at the spin. Are you defending their actions saying that their thievery went to fund research like Dr. Faustman and C-peptide? If so – how on Earth are you privy to such information? The district attorney is still investigating the internal affairs and malfeasance – but if they DID, in fact, spend that money on research – I will personally fire up the webcam to celebrate the heroism of taking one for the team. Somehow I don’t think they spent that money on a charitable cause. I could be wrong. Only time will tell. Best, Allie
      Reply to this
  • 2/29/2008 9:36 AM Brent wrote:
    Sarah, WAY TO GO! I couldn’t have said it better myself. Since the early 1970s, JDRF—which started out as a group of concerned parents striving to help their children—has evolved into the big elephant (corporation) in the room. Recently headed by a former Monsanto executive, JDRF’s mission has long-since changed to one of keeping corporate contributors happy, keeping corporate researchers happy, and funding what appears to be independent research only at medical schools where the researchers involved have heavy ties to corporate donors.

    I could tell you tales that would make your hair stand on end (maybe it actually did). Chemical companies, like Monsanto—during the 60’s and early 70’s—were going through transition, having to replace chlorinated hydrocarbons and other residual pesticides with newer, patented products. Those products already in the pipeline—that couldn’t be distributed (sold) in the U.S.—were shipped to Mexico, India and other countries with very little regulation. The end result was that many of our imported fruits and vegetables came back to us covered with these same banned pesticides.

    This was a win-win for the chemical companies because, in essence, the environmentalists/government regulators thought they had gotten what they wanted, and the chemical companies continued to make money. In reality, the chemical companies just sold (banned) products elsewhere and replaced their pipeline in the U.S. with patented (and possibly more dangerous) chemicals that had to be applied more often.

    This has become a ‘business model’ that transcends industries—and what are many charitable organizations but (quasi) corporations. [The business model among charities represents a win-win for corporations involved because well-intentioned private ‘contributions’ are funneled to corporate-friendly institutions of higher learning. In other words, research is directed almost totally by corporate needs—and finding a cure is NOT part of the business model.

    With an altered (perhaps unarticulated) mission statement, and ‘leadership’ that really doesn’t ‘have a dog in this fight,’ I suspect that this kind of criminal behavior will become more, rather than less, frequent. In fact, for many years, I have believed that the dispersal of monies and the mission statement of JDRF (and ADA) represent criminal behavior—soliciting/accepting money under false pretenses, at the very least. Surprisingly, these two men had the misfortune of being caught.

    My "best advice" to those who actually REMEMBER the JDRF mission and a voice in leadership selection: Why not select a leader who DOES have a dog in this fight?
    Reply to this
    1. 2/29/2008 12:47 PM Sarah wrote:
      Brent...You have confirmed my worst fears...and here I thought my head was just full of conspiracy theories because I like to watch the Discovery Channel late at night...

      It's real all right. And I bet many of us on this board knew that it would only be a matter of time before something like this erupted.

      NGO's and other charities like JDRF are the perfect companion to Big Pharma. They feed off each other, invest together, and grow together. I bet JDRF has invested much more in Big Pharma than anyone knows. I have always found it odd that they paired with Medtronic...Medtronic offers the "pipe dream" of an "artificial pancreas", which from what I can tell, will still require constant maintenance and supplies.

      It's another treatment, and NOT a cure. And yet JDRF funds Medtronic, when Medtronic should be funding its own research. Since Medtronic is not focused on a REAL cure, it looks like JDRF bent its own rules to partner with them in what I call a toxic symbiotic relationship.

      Makes you wonder what else JDRF bends the rules on to keep the cash piling in?

      I always said that they are secretly investing in some Type 2 research (I have already seen 1 study that references T2), because they know there are some huge T1 breakthroughs ahead, none of which they funded. If T1 is "cured" they're going to want a backup cause to keep the funds circulating and coming in. And once the "real" Juvenile Diabetes is cured (T1), they can focus on curing Type 2 diabetes "in children".

      Maybe I'm going out on a limb, but I honestly wouldn't put it past them.

      We all know that T2 research is the big money maker. The meds they use keep the CEO's of Big Pharma going to Dubai every winter.

      Totally agree with everything you said. I find it scary, but not surprising in the least.
      Reply to this
  • 2/29/2008 12:02 PM Allie Beatty wrote:
    Hey Sarah, I was disappointed each and every time JDRF denied funding for a project I believed truly deserved it. I wholeheartedly include Dr. Faustman and C-peptide among those projects. However, like the Chinese proverb says – with every crisis comes an opportunity or danger. Danger doesn’t scare me. When opportunity knocks – I answer. ::: someone’s at the door:::: Best, Allie
    Reply to this
    1. 2/29/2008 12:17 PM Sarah wrote:
      Go Allie! I'm right behind you! Or if I'm really mad, maybe right in front.

      Sometimes I see things so unbelievable and yet so predictable that I wonder if I'm on the Truman Show.

      I mean, how stupid does JDRF/Big Pharma/ADA think we (diabetics) are?
      Reply to this
    2. 3/6/2008 8:32 AM Nicholas Dynes Gracey wrote:
      .
      www.tinyurl.com/2w7gp9
      .
      Vernon Howard's
      SECRETS OF LIFE (R)

      **********************************************************************


      "When you complain about anything, that anything that you are complaining about is you yourself. You think it is out there, the way that person treated you. You say, "Look what they have done to me!" That is the storm. It comes from the false way you think, from your undeveloped emotions, from your childish re-actions. If you haven't gotten to the point in your inner journey yet where you know that you curse the whole world, you are going to have to go through disappointment after disappointment. "

      A Treasury of Trueness, # 1050


      Go to the Bookstore link at http://www.anewlife.org/html/home.html


      **********************************************************************

      Visit the SECRETS OF LIFE Archives of Vernon Howard quotes:
      http://archive.mail-list.com/secretsoflife

      **********************************************************************

      Share Vernon Howard's SECRETS OF LIFE with a friend!
      Forward this message to those you know who are also searching
      for the answers to life, or copy a past quote from the archives
      to e-mail them.

      **********************************************************************
      .
      Reply to this
  • 2/29/2008 3:33 PM bird54 wrote:
    I think I should highlight more context for the alarming JDRF endorsement referenced in my previous post --
    http://alliesvoice.com/2008/01/30/allies-voice-big-breasts-and-evolution.aspx#comment-807441

    Eisenbarth's research (www.tinyurl.com/3bqcm9) suggests that GM insulin can be the major cause of autoimmunity to the remaining beta cells. JDRF's advice suggests that it is standard procedure to overdose GM insulin in a type 1 diabetic -- "Even though you may not need insulin, some doctors prefer that you take small doses of insulin daily throughout the honeymoon period."
    http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=BB2FDD7B-1321-C834-03D562FD8ACA067C

    Surely the JDRF should be advocating beta cell preservation and intermittent C-peptide testing to monitor diabetics' progress?
    http://www.diabeteshealth.com/read/2000/09/01/2020.html

    Dean's reference (http://www.cmaj.ca/cgi/reprint/158/3/292.pdf) is without ANY mention of C-peptide testing. Dean could maybe have discriminated type 1 or type 2 by head shape (http://en.wikipedia.org/wiki/Craniology) or skin color (http://en.wikipedia.org/wiki/Caucasian_race) or DNA (http://en.wikipedia.org/wiki/Genetics) as she was trying to work out the difference between type 1 and type 2 -- but surely she should have adopted the C-peptide test. The Dean article says -- "It took me quite a while to realize that this was not type 1 diabetes because it was appearing in such a young population." Dean's reference refers to her comments in the 1980's. The C-peptide test was available since 1972.
    http://www.diabeteshealth.com/read/2008/01/03/5612.html

    The Dean article also says -- "Furthermore, she said researchers haven't studied children with NIDD (type 2) for sufficient time to know the longterm prognosis. Dean expects that their future may be bleak. One of the children she diagnosed with the illness, who is now 23, has already developed chronic renal failure, is receiving dialysis and is almost blind."

    So I also wonder what sort of dietary diabetic protocol or drug protocol that Dean (www.aap.org/nach/DeanHeather.htm) advises for her type 2 patients.

    Dean says "--Type 2 diabetes is not found in the youthful Caucasian population, so it took a long time for me to convince the medical community." Whilst evidence actually says "Both type 1 (T1D) and type 2 diabetes (T2D) are increasing in incidence in children; often an admixture of T1D and T2D features are present at diagnosis."
    http://www.ncbi.nlm.nih.gov/pubmed/16243484?ordinalpos=14&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

    Schnitzer & Tubiana (www.tinyurl.com/yrhksm) suggest that MOST type 1 diabetics are actually misdiagnosed type 2 diabetics, WRONGLY given animal insulin or GM insulin -- because of a lack of C-peptide testing, since 1972, and evidence increasingly supports their opinion.
    http://alliesvoice.com/2008/01/09/allies-voice-have-you-been-stimulated.aspx#comment-760354
    Reply to this
    1. 2/29/2008 4:09 PM bird54 wrote:
      Here is what I posted at Diabetes Health this morning--
      http://www.diabeteshealth.com/read/2008/02/21/5658.html


      Posted by bird54 on 29 February 2008
      Hi Catman and Ladybird,

      Just for clarity this is the link that Ladybird referred to...
      http://www.diabeteshealth.com/read/2007/11/29/5564.html#comments

      and here’s what I posted at www.LoveDiabetes.cOM...
      http://alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-862195

      Ladybird, here is a link to a fresh organic raw liquidiet -- to help combat auto-immunity and reduce inflammation...
      www.LIQUIDarian.cOM
      Reply to this
  • 3/1/2008 8:23 AM Nicholas Dynes Gracey wrote:
    .
    WHY are the JDRF always INNOCENT of HELPING support T2 diabetes in CHILDREN of T1 Diabetic Moms?


    WHAT WILL A COURT DECIDE if 'Robin Hood' {www.tinyurl.com/3xcgy7} BROWN & STENGER are INNOCENT and were really providing 'extra' support for T2 diabetes in Children born c/o a T1 Diabetic Parent?


    HOW COULD THEY have believed that T2 Diabetic 'C-peptide-rich' Children have such a profound T2 genetic advantage ... that 'thrifty T1 gene' pregnancies are increasingly favoring the 'less thrifty T2 gene' Children(?) ... maybe because if Mom was a T1 Diabetic ... You REALLY could be a 'mis-diagnosed' T2 Diabetic {www.tinyurl.com/2arzxs}, just like Halle Berry(?), as suggested by Schnitzer & Tubiana {www.tinyurl.com/yrhksm} ... well before BROWN & STENGER were dismissed RE the "email rumor"(?).



    new ... BROWN & STENGER 'Defendants Evidence' {to add to: www.tinyurl.com/3cesvf}...


    > 0208 www.tinyurl.com/27xjlm {Tine.Dalsgaard.Clausen@dadlnet.dk ~ In Children of T1 Diabetic, primarily Caucasian Moms, the risk of T2 diabetes/pre-diabetes was significantly associated with elevated maternal blood glucose in late pregnancy}

    http://www.DiabetesHealth.com/read/2008/02/26/5664.html {Patrick Totty ~ "...Moms' Type 1 or Pregnancy-Related Diabetes Increases Offsprings' Prospects for Type 2 ... A study at Copenhagen University Hospital in Denmark says there is a link between type 1 or pregnancy-related diabetes in mothers and the later onset of type 2 diabetes in their children..."}

    http://www.DiabetesHealth.com/read/2007/11/02/5548.html {Linda von Wartburg ~ "...Halle Berry Says She's Worked Her Way Up From Type 1 to Type 2 Diabetes ... She says, 'I've managed to wean myself off insulin, so now I like to put myself in the type 2 category.'..."}



    WHEN were ALL DIABETICS INNOCENT?

    .
    …Warm thanks & Adrenalin Love
    Nick Gracey, BSc(Hons) Medical Biochemistry, Birmingham University, UK, WATerian (C) SAT.01.MAR.2008 @ 13:23hrs c/o www.LoveDiabetes.cOM & www.HYPO-thesis.cOM
    .
    AdrenaLINE... www.1MealPerDay.cOM ..."Lovingly-I-Fast-Every-23hrs-45mins-OrMore"
    .
    Reply to this
  • 3/1/2008 8:47 AM Brent wrote:
    Allie & Sarah--

    An inventor friend of mine, who has a T1 son of long standing, is an electronics guru. Can you imagine a non-invasive, continuous blood glucose monitor which provides the user with a 5-minute display on a Blackberry, can also be hooked up to a pulsing device in the sole of a shoe to register walking/energy expended (IOW kilocalories expended) and, of course, has the bells and whistles regarding warnings for TOO HIGH and TOO LOW bGs.

    He originally shopped this device with several meter makers, trying to interest them in purchasing the patented product with a GUARANTEE that it would be in the marketplace within a year. In essense, they wanted to BUY it, but SHELVE it.

    At the same time, in order to document the safety and reliability of this product (as well as accuracy), he contacted charitable diabetic organizations and medical facilities/institutions looking for cooperation. As a private inventor, without significant cash resources, he found he could not even get his foot in the door.

    The product, at the present time, is in FDA's 'black hole', cannot be talked about or distributed and small children continue to get their fingers pricked 5, 6, 7 times a day by parents horrified by the thought of an unpredicted low. This product has an accuracy level of 95-99%; some "commercial" meters are still only in the 80% range.

    My son-in-law has a MiniMed pump which interacts with their CBGM infusion system, at a cost of $1000 for the unit, plus $300/month for sets. The accuracy for this 'system' has a built-in time-delay relative to blood sugars vs. intracellular levels of glucose.

    The estimated cost of the non-invasive system was estimated to be less than $1000 for the initial purchase, plus $90 every three months for a new 'set.' To say the very least, MiniMed and other meter makers want to keep the dollars flowing in and prevent useful, less expensive, more patient-friendly (pain and suffering) competition from entering the marketplace.

    Oh, BTW did I mention--when MiniMed's CBGM is used on a regular basis, it must be coordinated with a meter-reading at least twice a day (don't want to eliminate meters and strips from our routine). In science, one is taught that readings from one inaccurate device should not be compared with those from another very inaccurate device. Present-day diabetic tools are basically just instruments of business greed. I suspect JDRF (and others) could not support this kind of research/product lest they offend their corporate 'partners.'
    Reply to this
  • 3/2/2008 7:50 AM Nicholas Dynes Gracey wrote:
    .
    www.tinyurl.com/2w7gp9
    .
    Vernon Howard's
    SECRETS OF LIFE (R)

    **********************************************************************


    "I am personally responsible for my own actions, and I am personally responsible for the consequences of those actions. That should absolutely thrill you to hear that."

    From a talk given 3/30/1988


    Go to the Bookstore link at http://www.anewlife.org/html/home.html


    **********************************************************************

    Visit the SECRETS OF LIFE Archives of Vernon Howard quotes:
    http://archive.mail-list.com/secretsoflife

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    Reply to this
  • 3/2/2008 6:19 PM Nicholas Dynes Gracey wrote:
    .
    BROWN & STENGER are 'INNOCENT' until a Court declares otherwise and subject to their 'right of appeal' ... BROWN & STENGER are INNOCENT and personally responsible for their own actions, and are personally responsible for the consequences of those actions. That should absolutely thrill you to hear that.

    When You & the JDRF make judgments upon BROWN & STENGER ... what is your evidence that BROWN & STENGER are not INNOCENT and what is your evidence that BROWN & STENGER did not secretly demand that Frederick Banting's 1925 guidance be followed in preference to that of the JDRF published since at least 2005?

    > 0905 www.tinyurl.com/2d6d9s {JDRF 'advice / guidance' ~ "...Even though you may not need insulin, some doctors prefer that you take small doses of insulin daily throughout the honeymoon period..."}



    Part 3 of the new EVIDENCE matrix trilogy 'before FAIR trial & judgment' of BROWN & STENGER aka 'Defendants Evidence' {to add to: Part 1: www.tinyurl.com/3cesvf & Part 2: www.tinyurl.com/39ehq2} ...

    Nobel Lecture, Frederick G. Banting, September 15, 1925 {www.tinyurl.com/2xrb8n & www.tinyurl.com/24eqyo} ...

    '...Regardless of the severity of the 'T1A diabetes', it has been found that by carefully adjusting the diet and the dose of insulin, 'ALL Diabetics' may be maintained sugar-free. Since this is possible, it is to be strongly advocated, because we have abundant evidence for the belief that there is regeneration of the islet cells of the pancreas when the strain thrown upon them by a high blood sugar is relieved. The increase in tolerance is evidenced by the decreasing-dosage of artificially administered insulin. In fact, in some moderately severe cases, the tolerance has increased sufficiently that they no longer require insulin...'

    OR

    LoveDiabetes.com Lecture ... Sunday, 02 March, 2008 {www.tinyurl.com/ywmoyn} ...

    "...when the natural 'down-regulation' adaptations {www.tinyurl.com/2po68s} thrown upon them by dehydration {www.tinyurl.com/ypozqv} and Relative HYPOglycemia Distress 'RHOD' {www.tinyurl.com/2uxb99} is relieved. The increase in tolerance is evidenced by the decreasing-dosage of artificially administered insulin. In fact, in some moderately severe cases, the tolerance has increased sufficiently that they no longer require insulin; [aka 'CURED'].




    ... If You really & truly CARE about truth & justice & Fred Banting's guidance for a CURE of all T1A Diabetics [easier NOW than then (?)] ... PLEASE start asking the JDRF some reasonable QUESTIONS with a genuine desire for reasonable ANSWERS ... before judging BROWN & STENGER without ANY reasonable evidence / trial / Jury / judgment / sentencing / parole [aka explanation / understanding / FORGIVENESS].



    .
    …Warm thanks & Adrenalin Love
    Nick Gracey, BSc(Hons) Medical Biochemistry, Birmingham University, UK, WATerian (C) SUN.02.MAR.2008 @ 22:14hrs c/o www.LoveDiabetes.cOM & www.HYPO-thesis.cOM
    .
    AdrenaLINE... www.1MealPerDay.cOM ... "Lovingly-I-Fast-Every-23hrs-45mins-OrMore"
    .
    Reply to this
    1. 3/3/2008 12:55 PM Brown & Stenger wrote:
      BROWN & STENGER are GUILTY!

      If they weren't, they would have filed for "Wrongful Termination" against JDRF. If they were dismissed without cause, they would cash in like a lottery.

      Why not file a lawsuit? In discovery, their illegal behavior would be disclosed and they would end up in even more trouble. Instead, they quietly walk away with their tails between their legs and hope the district attorney can't dig up enough dirt to convict.

      JDRF may have lost a lot of money to these crooks. The real risk they face is the negative publicity from this situation. If people don't trust them anymore, the donations will disappear. That is far more catastrophic to the organization and to the research they do support than the embezzlement that took place.
      Reply to this
      1. 3/3/2008 2:26 PM Sarah wrote:
        It certainly doesn't say much for the world's state of moral affairs when people feel that it is OK to STEAL from a CHARITY.

        The one benefit from this may be that people will now begin to give to LCT, Faustman, Sick Kids hospital, etc. instead of JDRF.

        Places such as the above have made progress in a cure for T1DM...and without JDRF.

        Perhaps this is for the better...everything happens for a reason, right? If we were to transfer even half of JDRF's money into any of the above resources, I bet we would be cured by now (or at least that much closer).
        Reply to this
  • 3/2/2008 10:41 PM Glenn Vogel wrote:
    Well again just some more people out there looking to take advantage of other people who are suffering. I just received my insulin from England and well if other people who did not have nothing but profit on their minds and I think we all know who they are then I would not have to order my insulin from England and hope and pray that I get it. It just a tip of the iceberg for all the corruption and diabetes. Why do diabetics have to spend over $5000.00 every six months to get insulin they use to get for a few dollars and did not need a prescription to get it. Why did the stop manufacturing an insulin that lasted longer and help people live a better life. PROFIT my friends and now they are stealing from the very people who are trying to help find a cure. I am just waiting for them to come and kick me in the crouch and say this is a new treatment for helping my diabetes. Yes, they all are scumbags Allie and yes it is very sad to see not only these guys steal from us but to allow large corporations take away options to find better ways to live our lives. Keep up the good work and remember never let your voice stop speaking the truth about how we have been screwed by the very people who say there are here to help.
    Reply to this
  • 3/4/2008 4:32 AM bird54 wrote:
    Article 12 -- BROWN & STENGER -- PRESUMED INNOCENT or REASONABLE DOUBT?
    http://youtube.com/watch?v=MrHD949bq44


    "-- Getting fired, unfortunately, can happen to the best of us. It can happen even when it's not your fault. There could be a personality conflict between yourself and your supervisor. -- Experts say that at least 250,000 workers are illegally or unjustly fired each year and that's not counting those that were justifiably terminated. --"
    http://jobsearch.about.com/od/salary/a/fired.htm


    In the US criminal justice system, one is PRESUMED innocent until PROVEN guilty.

    Several years ago I got a jury summons and underwent the jury selection process. It was a rape case. I objected to serving on the jury because a friend of mine had been previously, brutally raped. I did not feel that I could be unbiased. So I said, "If the police had probable cause to arrest the suspect, he is probably guilty."

    Well the judge excused me from the jury, but strongly reprimanded me saying, "That is not how our system works." Then he gave a lecture to the other jurors asking them to disregard what I had said.

    Afterwards I wondered how my words may have affected the other jurors. Did it put reasonable doubt in their minds? What if the poor man was innocent and my words had poisoned the minds of the other jurors? How many innocent people are in jail because they have gotten an unfair trial by their peers? Isn't that why some high profile cases are tried in other states or communities to avoid the negative publicity of the press?

    You people in the autoCommunity are reacting like a lynch mob. You are over-reacting and poisoning the minds of people by your biased opinions and prejudiced statements. Why don't you let the justice system do its job? I understand that it is a very emotional issue for you and that is EXACTLY why our criminal justice system is set up the way it is—to protect the innocent from public lynching.

    Lynch mob mentality acts without evidence and so far there is too much 'rush to judgment' speculation about BROWN & STENGER and far too much defamation of BROWN & STENGER on this blog.

    It certainly doesn't say much for the world's state of moral affairs when people hide behind internet pseudonyms and suggest that “BROWN & STENGER feel that it is OK to STEAL from a CHARITY” -- when the anonymous "lynch mob" defamers have no reasonable evidence for any such "school bully" comments.

    It is too early to make a reasonable judgment other than there is an ongoing investigation and that BROWN & STENGER are still INNOCENT as charged.

    Article 12 regarding your 12 angry comments OR are there more?
    Anyone?
    Anyone?
    http://youtube.com/watch?v=gTDhgR3p12w&feature=related

    Lovingly,
    Mollie
    Reply to this
    1. 3/4/2008 9:42 AM Sarah wrote:
      Please respectfully consider what I am going to say as I have done for you. While I agree that there is always a chance these people are innocent, I think I have to make the point clearer for you. Many of us see this as just the tip of the iceberg for future JDRF scandal.

      There is NO evidence to support any of your/Nick's *speculations* regarding this case. None. For all we know, these guys (if guilty) used the money to fund future sex-change operations. It's just as plausible.

      I am confused as to why you must always want to argue, or oppose what the vast majority of the group thinks, even if they have good reason to think that way. You appear as though you just want to fight. Why is that? You promote "loving", so I am curious as to why you come across as so angry. Are you not happy with your life? Your body? Is this an alter ego, or do you behave this way with your friends? Or are you a troll, and simply like to upset people?

      Why do you post things like "hiding behind internet Pseudonyms" and combine it with MY comments? I posted the comment under MY name, that is all.

      In fact, I use post using my real name, and I have posted my pictures on this site. I am not scared to show myself and stand behind my comments. How can you accuse others of "assuming" when you assume I posted comments I did not? Or that Gracey's UNPOROVEN hypothesis has merit, and yet discredit a court case with suggestive evidence. It just doesn't make any sense. How can you accuse me of making comments I did not make? I show exactly who I am, literally and figuratively.

      You "Bird54", on the other hand, WILL NOT post a simple "before" and "after" picture of yourself upon request.

      Regards,

      Sarah

      P.S. Allie STARTED this blog to blow the cap on diabetes scandals (i.e. c-peptide access) and current issues for diabetics. If you don't agree with her blog, no one is forcing you to read it. You should be respectful of the hard work she has done. There is no reason to be an elitist on this forum.
      Reply to this
      1. 3/4/2008 10:58 AM bird54 wrote:
        Sarah wrote-- "...and yet discredit a court case with suggestive evidence." --

        WHAT "court case" is your comment referring to -- how can you allege thare is a "court case". You have fabricated this "court case" to add weight to your "suggestive" prejudice?
        YES?
        ANYONE
        ?
        anyONE?
        Reply to this
        1. 3/4/2008 12:18 PM Sarah wrote:
          The investigation and court case you will likely be hearing about in the media in the not so distant future.

          The case has already been turned over to the district attorney, as previously mentioned.

          Why are you avoiding my questions?

          Best of luck.
          Reply to this
          1. 3/4/2008 12:51 PM Sarah wrote:
            Better yet, don't bother to respond. To any of my questions. You just want to fight with me and others on this board. You feel that you have a right to believe in what YOU want to believe, but you don't allow others to do the same. It's OK, I understand.

            Best Wishes.
            Reply to this
            1. 3/4/2008 1:14 PM bird54 wrote:
              Hi Sarah,

              What I understand from your reply is that you specifically fabricated a "court case" that does not exist apparently to add weight to your "suggestive" prejudice?


              You go further than avoiding questions. You fabricate issues and then seek to avoid answers to your fabrications.


              You have fabricated 'evidence' for your "suggestive" prejudice before -- for example your fabrications about T2 diabetes --


              -- If you cannot provide ONE pubmed research reference (re T2 diabetes), with an un-drug-treated T2 control group, evidencing why I, or any other un-drug-treated T2 diabetic (ie protected by C-peptide), should ever be concerned about my blood glucose rising as high or higher than yours / or any T1 (or other HYPOglycemia drug-treated diabetic) -- YOUR consistent complete and ongoing lack, of any evidence, reasonably suggests you DISCRIMINATE, without evidence, against un-drug-treated T2 diabetics who YOU repeatedly allege (always without any evidence) will suffer HYPERglycemic damage (irrespective of obvious C-peptide protection) as a consequence, YOU SAY, of being "OBESE".
              Reply to this
              1. 3/4/2008 2:52 PM Sarah wrote:
                The irony of your response is amusing. Whatever makes you happy, I suppose. Good for you!
                Reply to this
      2. 3/4/2008 8:53 PM bird54 wrote:
        IS MOBOCRACY RIGHT?

        Sarah said "-- I am confused as to why you must always want to argue, or oppose what the vast majority of the group thinks --"
        http://alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-870930

        Here's what Catman had to say about majority thinking --Posted by Catman on 1 March 2008

        “As someone who excels at problem-solving it has been my consistent observation that the probability is great that what the majority believe is either dead wrong or seriously flawed.”

        http://www.diabeteshealth.com/read/2008/02/21/5658.html

        mobocracy: rule by the mob

        http://www.merriam-webster.com/dictionary/mobocracy

        “Ochlocracy … … mobocracy … majoritarianism, it's akin to the Latin phrase mobile vulgus meaning "the easily moveable crowd”…
        As a term in civics it implies that there is no formal authority whatsoever, not even a commonly-accepted view of anarchism, and so disputes are raised, contended and closed by brute force − might makes right, but only in a very local and temporary way, as another mob or another mood might just as easily sway a decision. It is often associated with demagoguery and the RULE OF PASSION OVER REASON.”
        http://en.wikipedia.org/wiki/Ochlocracy
        Reply to this
  • 3/4/2008 10:26 AM Melody wrote:
    Sarah--

    I think there are always those who feel they "serve" by playing devil's advocate. I must confess that I oftentimes fall into this mode when I enter discussions. In recognizing there are always at least 2 sides to a story, I try to position myself intellectually in the shoes of each 'side.'

    That said, I unfortunately have seen so many travesties that have been accepted and have now become the 'norm,' that I have difficulty maintaining the 'innocent until proven guilty' directive.

    In the case of many of our charities, and their misapplication of donated funds--and constant supplication for further contributions--I have come to this conclusion. Once upon a time, we were told that "if it walks like a duck, and quacks like a duck . . . it's probably a duck." With constant accumulation of negative information, many of these issues now extend to this: "if it walks like a duck, quacks like a duck, waddles like a duck, swims in the water, molts duck-like feathers, pecks on the ground for food, assembles with other ducks in communal congress . . . IT'S DEFINITELY A DUCK, and you should probably check out the soles of your shoes."

    My suggestion to you (and one which I employ with increasing frequency) is the facile use of the 'scroll' tool when I encounter those who seem more interested in picking a fight than in sharing information and looking for solutions.
    Reply to this
    1. 3/4/2008 11:04 AM bird54 wrote:
      Sarah wrote-- "...and yet discredit a court case with suggestive evidence." --

      WHAT "court case" is Sarah referring to in her comment? -- How can you apparently support her allegation that there is a "court case" or do you call it a "duck". Sarah has fabricated this "court case" to add weight to her "suggestive" prejudice which you support?

      Lovingly,
      Mollie
      Reply to this
    2. 3/4/2008 12:43 PM Sarah wrote:
      Thanks. The problem is that I don't want these discussions to lose sight of the big picture...the REAL reason why we are here. I want to keep "on topic".

      It will take some time, but I will have to accept my new mantra of "the scroll feature is my friend"...
      Reply to this
      1. 3/4/2008 3:46 PM BetterCell wrote:
        Sarah......It is also good exercise for the middle and index finger, which is recommended for people w/T1DM. LOL
        Reply to this
      2. 3/4/2008 6:55 PM Melody wrote:
        Sarah--

        I don't want to lose sight of the big picture, either. I think Allie has more good stuff in store for us to discuss. In the meantime, I know it takes a bit of practice to incorporate the 'scroll' function and the 'delete' key into one's routine--but I practice everyday, and am getting quite good at it.
        Reply to this
        1. 3/4/2008 8:36 PM Sarah wrote:
          I agree. My, my, the internet certainly attracts some interesting people, does it not? I thought I could only find those types at hippie gatherings...debating things like the "Moon Landing Hoax"...

          I am done trying to "reason" with the irrational, apparently some stranger on the internet claims to know all about me and what I supposedly do (or do not do).I wonder why they are not focusing on their own life...I'm a Microbiology and Immunology major (pre-med)...I'm confident in my convictions. My doctors ask ME for advice in my care. No one knows their body more than the diabetic. In fact, it was ME who unofficially diagnosed my own Celiac Disease, and demanded to be tested for it, back in 2005.

          The fact that diabetics know their body best is evident in the many insightful posts here.

          I love hearing about others also trying to piece together the T1 puzzle, at least those who do so in a nice, respectful, and logical way.

          Thanks for the advice Melody and Bettercell, I''m sure I'll get a lot of opportunities to "practice"...
          Reply to this
          1. 3/4/2008 9:23 PM Sarah wrote:
            While Bird54 continues to veer off topic wasting time with personal comments, and claim unproven speculation as fact, here's what Dr. Jim Lane, MD and diabetes expert, says:

            http://www.childrenwithdiabetes.com/dteam/2008-03/d_0d_f37.htm

            I have told Mollie that she can contact him if she wants to dispute his statement, instead of veering off topic on this board.
            Reply to this
            1. 3/4/2008 10:12 PM Sarah wrote:
              P.S. What's really alarming is that there is a good chance that Gracey/Bird54/and the new "Catman" reference are all the same person...posting on 3 different but overlapping "styles". You just don't know who you are to repsond to!

              Sure my speculation *could* be wrong...but I wouldn't put it past this person...

              When you have to actually create people to support your claims...
              Reply to this
              1. 3/4/2008 10:20 PM Sarah wrote:
                P.S. IF "Catman" IS Bird54, "he" makes an interesting claim...he speaks of being thin but having high levels of insulin/insulin resistance. He also says he ate "enormous" amounts of carbs...much like how Bird54 said she was thin and "ate like a horse". Funny, eating excess carbs (particularily high glycemic) raises insulin levels, creates insulin resistance, and later leads to weight gain and Type 2 diabetes. Diet is a KNOWN cause for T2. And poor diet choices can come before weight gain.

                So Bird54/Catman just has your run of the mill diet (self) induced Type 2 diabetes, even though she claims she was thin and ate healthy...funny...

                OK, I'm done with the personal comments, Bird54 won't mind, it's a taste of her own medicine...
                Reply to this
                1. 3/4/2008 10:21 PM Sarah wrote:
                  Reference: http://www.diabeteshealth.com/read/2008/02/21/5658.html
                  Reply to this
                  1. 3/6/2008 4:30 PM BetterCell wrote:
                    Sarah, I have just come across this, as reported in the New Scientist:
                    "Scientists led by Dr Terry Strom used a cocktail of drugs designed to "tame" the out-of-control immune response hitting the pancreas.

                    Last year, the team showed that a mix of three drugs could stop the ongoing destruction of beta cells in mice. But it was still impossible to trigger the regrowth or recovery of lost or damaged cells.

                    Now the scientists have added an extra ingredient to the mix, an enzyme called alpha 1 anti-trypsin, which is normally produced by the body to ease inflammation.

                    The new cocktail was given to diabetic mice for three weeks. Fifty days after the treatment ended, there was a significant rise in the number of insulin-producing cells.

                    Dr Strom said: "It would appear that by altering the inflammatory state that surrounds this auto-immune disease, you can create an environment that enables expansion of the beta cell mass."
                    They are probably going to target this study to newly-onset-T1DM in children.
                    But this is my question to you:
                    There are a number of US in the T1DM Community who feel that Beta Cells are able to re-generate and that the Inflammatory Process remains constant attributing to the unending cycle whereby the beta, delta and maybe gamma cells continue to be destroyed so as to make exogenous Insulin, "the only way to go." This in turn causes other problems in terms of Insulin-Glucose balance, Hypoglycemia Unawareness and more.
                    So, if this new cocktail that can quench the Inflammatory Process in newly onset T1DM, why then cannot not be applied to ALL of us also with T1DM if we actually continue to have Beta Cell Regeneration?
                    Reply to this
                    1. 3/7/2008 1:35 AM Sarah wrote:
                      For those with constant beta cell turnover, it likely CAN. Again, there are many factors involved. That said, no one really knows. As stated earlier, it may (or may) not be different for different people. Nobody knows if absolutely everyone with T1 has beta cell regeneration...studies I have seen only show a percentage do...but most of those studies are shorter term. Perhaps long term studies will show otherwise.

                      For me, it took a few things to see progress in what I believe *MAY* be notable beta cell activity:

                      -Removal of milk protein (a possible trigger).
                      -A high cortisol level, leading to an abnormally low T-cell count (reduced autoimmune attack).
                      -Use of anti-inflammatory supplements like Omega 3 EFA.
                      -Constant low/normal BG levels to facilitate beta cell activity/regeneration.

                      Note that my insulin requirements returned to normal when my T-cell count returned to normal levels. So in my case, there is a chance that without that occurring, my long-standing autoimmunity will not reverse. This can also happen with long-standing untreated Celiac Disease, called "Refractory Celiac". The disease does not go away without immune modulation in the form of drugs.

                      For me, there is a chance that removal of the trigger(s) may not be enough. But who knows?

                      I also can't rule out that the low T-cell count was the ONLY thing causing my severe lows and decrease in insulin needs.

                      Personally, I see a cure for autoimmune T1DM as *likely* being an individual thing..some of us may need more help than others. Than again, maybe not. Only time will tell.

                      As I have said before, I do think all T1's should be on Omega 3 EFA, a powerful anti-inflammatory, which in one study was linked to beta cell preservation in new onset T1. It may have a similar effect in those with residual beta cells.

                      Thanks for the post! I have seen this study, and I am intrigued.
                      -
                      Reply to this
                      1. 3/7/2008 1:49 AM Sarah wrote:
                        Link (makes small reference to Omega 3 EFA in beta cell preservation trial-lots of info here overall):

                        http://www.niddk.nih.gov/fund/other/FDA-NIH/Palmer.pdf
                        Reply to this
                        1. 3/7/2008 2:09 AM Sarah wrote:
                          Note how our friend Bird54 is using statements that relate to Type 2 diabetes (self induced diabetes) again on an autoimmune insulin deficiency (Type 1 diabetes) thread. It's not a mystery that all of us auotimmune Type 1 diabetics have to rely on Big Pharma to live...yawn...it's just that most of us would rather do that than die...There are NO proven cure solutions (yet) to cure autoiummune T1...from ANY form of medicine.

                          Not much of a choice, is it? If I were a Type 2 diabetic, I could "cure" myself with diet and exercise (and weight loss for overweight people). It would be so easy to be a Type 2 diabetic. And yet so many of them won't change their lifestyle for an easy "cure". Even when they caused their own disease. Why is that?

                          P.S. Those ignorant Type 2 diabetics who have no idea that autoimmune insulin deficiency exists are annoying. Not everyone has lifestyle induced diabetes, and would rather pop pills than change what they eat...
                          Reply to this
                          1. 3/7/2008 8:50 AM BetterCell wrote:
                            Thanks for that PDF on Beta Cell Preservation Sarah.
                            I at times dislike using metaphors, but in this-case as to why, "so many of them won't change their lifestyle for an easy "cure". Even when they caused their own disease. Why is that?"
                            It is like waking up in the morning and always getting off the bed on a particular side. After a while the person begins to think that only one side exists. Due to the long/frequent behavior, the person then becomes unaware that another side to the bed exists.
                            So for many of those w/IRD(aka Type 2 Diabetes) it is much easier as you have said to "pop a pill" than to change any existing Lifestyle that might be contributing to their Illness. What a shame!!......
                            I once asked a Physician(Endo Fellow)......."wouldn't you rather be treating a patient who is motivated, compliant, takes responsibility for his own Body, has a more challenging Illness not brought on by a negative Lifestyle pattern?"
                            He only smiled.
                            Here in NY, despite it being a "sophisticated city," (whatever that means) there still exists much Ignorance about T1DM among the population in general. That is due to the media "lumping" both T1DM and IRD into the same "bag" and by giving the *other* Illness the same name as ours(Diabetes).
                            Reply to this
                            1. 3/7/2008 9:20 AM Sarah wrote:
                              I agree. It's just so frustrating to see people who could take charge of their health, not do so. Of course not all T2's ("Insulin Resistance Disease" as you call it...exactly what it is) do not change their lifestyle, but many do not. And it is a true shame. We have all seen a T2 who has refused to change their lifestyle, and instead suffered needlessly.

                              My husband's grandmother was a wonderful women. However, she developed obesity and Type 2 diabetes, likely as a result of her diet...daily fried German dishes/derserts, and lots of red meat. She was a diet controlled T2 who never really changed her diet...she died at a young age in the ICU in a horrible way..

                              Kidney failure, a massive infection, heart failure,and poor circulation. I had never seen my now husband cry until he described his grandmother that day.

                              What is truly sad is that there is a good chance this did not have to happen.

                              I personally cannot understand how someone could not respect their body enough to make some basic changes, since I value my health so highly. I live a really healthy lifestyle, and expect others to want to do the same.

                              I agree that there is so much confusion between T1 and T2 that it is both frustrating and maddening. Some people will just never get it, no matter how hard you try to explain. Although the media has gotten better, I still find many articles describing "Insulin Resistance Diabetes" (Type 2) without clearly mentioned the words "Type 2" or pointing out that other forms of diabetes exist.

                              In my opinion, lumping T1 in with T2 is doing ALL forms of diabetes a disservice, especially when it comes to treatment and a potential solution.
                              Reply to this
                        2. 3/7/2008 2:15 AM Sarah wrote:
                          Sorry for being offensive...but I am annoyed at people who are always losing focus of the topic...which lately has been autoimmune T1. There is NO reason to post links to comments that imply(Type 2 diabetics) are cash cows for Big Pharma on this forum.

                          That is obvious. We all know that. And us autoimmune T1's have no choice but to rely on Big Pharma, so there is no point to bring this up other than to make people upset...pathetic...
                          Reply to this
                    2. 3/7/2008 10:48 AM bird54 wrote:
                      TYPE 1 DIABETES has been a LIFESTYLE choice since 1925 ?

                      Nobel Lecture, Frederick G. Banting, September 15, 1925 {www.tinyurl.com/2xrb8n & www.tinyurl.com/24eqyo} ...
                      '...Regardless of the severity of the 'T1A diabetes', it has been found that by carefully adjusting the diet and the dose of insulin, 'ALL Diabetics' may be maintained sugar-free. Since this is possible, it is to be strongly advocated, because we have abundant evidence for the belief that there is regeneration of the islet cells of the pancreas when the strain thrown upon them by a high blood sugar is relieved. The increase in tolerance is evidenced by the decreasing-dosage of artificially administered insulin. In fact, in some moderately severe cases, the tolerance has increased sufficiently that they no longer require insulin...'

                      Lovingly,
                      Mollie
                      www.LIFE2345.cOM
                      Reply to this
                      1. 3/7/2008 11:12 AM Sarah wrote:
                        Man, you're slow. Perhaps a science course would help you?

                        You/Gracey are taking this out of context. As usual, you are "cherry picking". What the link says and what you say are 2 different things. As usual, you are just as irrational as ever.

                        Also, being maintained "sugar free" means that using URINE testing (circa 1925) and *insulin* will achieve "sugar free" urine and keep the person with a blood sugar less than 10 mmol/l (typical threshold in which the body will dump sugar into the urine).

                        Truth hurts, doesn't it?

                        As for the rest of your claims, read the study in my other post above (DCCT) that clearly shows that intensive insulin therapy (i.e. MORE insulin) results in a HIGHER c-peptide.

                        Again, making claims with NO proof. Please stop replying to my posts, and stop posting my quotes on other websites. I did not give you permission to do so.

                        Lovingly,

                        Sarah
                        Reply to this
                        1. 3/7/2008 11:19 AM Sarah wrote:
                          P.S. If you are willing to discuss autoimmune diabetes in a sane, logical, evidence based manner, we will listen to you. You are not stupid, you KNOW you are always speculating and taking things out of context. If you want people to listen to you, perhaps you might want to try a different approach.
                          Reply to this
                        2. 3/7/2008 11:21 AM Sarah wrote:
                          Please do not respond to this, I am sick of trying to reason with you. I made a mistake in replying to this in the first place. Ooops!
                          Reply to this
                      2. 3/7/2008 12:11 PM Sarah wrote:
                        P.S. You are aware that other factors other than diet affect blood glucose levels in a T1 diabetic right? Apparently not.
                        Reply to this
                      3. 3/7/2008 3:21 PM bird54 wrote:
                        PLEASE NOTE: '...it has been found that by carefully adjusting the diet and the dose of insulin, 'ALL Diabetics' may be maintained sugar-free...'

                        IE -- thereby encourage natural Beta-Cell Insulin "BCI" production / Beta-Cell C-peptide "BCC" production / Beta-Cell reactivation/regeneration?


                        > 0180 www.tinyurl.com/3xtff9 {T Deckert ~ Good guidance of T1A = more natural BCI & BCC-peptide SECRETION}

                        > 0178 www.tinyurl.com/2krkv3 {T Deckert ~ MINIMIZING Non-Human INSULIN dosage = MAXIMIZES natural BCI & BCC-peptide SECRETION}


                        Lovingly,
                        Mollie

                        www.LIFE2345.cOM
                        Reply to this
              2. 3/4/2008 10:52 PM BetterCell wrote:
                You are correct Sarah.........with a touch of Professor Morriarty added to the existing personas.
                Reply to this
                1. 3/6/2008 12:33 AM bird54 wrote:
                  This is what catman posted--

                  "Interesting stuff on LoveDiabetes. Unfortunately for the unsuspecting diabetics who actually 'trust the system' diabetes is a large and lucrative business. Just imagine yourself as a side of prime rib or filet that sells for much more per pound than stewing beef and you will get a bit of an idea of how you look to the pharmaceutical industry compared to a non-diabetic person."
                  http://www.diabeteshealth.com/read/2008/02/21/5658.html
                  Lovingly,
                  Mollie
                  Reply to this
  • 3/4/2008 11:37 AM Nicholas Dynes Gracey wrote:
    .
    www.tinyurl.com/2w7gp9
    .
    Vernon Howard's
    SECRETS OF LIFE (R)

    **********************************************************************


    "Complaints against life for denying our desires are unjustified. Both the complaint and its pain will evaporate if we make an effort to understand one characteristic of desire. Desire always splits itself into Yes and No, that is, by desiring something we must expect an answer of either Yes or No. A man desires riches or fame or popularity because he wrongly thinks they can relieve his underground insecurity. By seeing through this false reaching for security, the desire fades, followed by the fading of Yes and No, followed by the ending of complaint and anxiety."

    Esoteric Mind Power, p. 106


    Go to the Bookstore link at http://www.anewlife.org/html/home.html


    **********************************************************************

    Visit the SECRETS OF LIFE Archives of Vernon Howard quotes:
    http://archive.mail-list.com/secretsoflife

    **********************************************************************

    Share Vernon Howard's SECRETS OF LIFE with a friend!
    Forward this message to those you know who are also searching
    for the answers to life, or copy a past quote from the archives
    to e-mail them.

    **********************************************************************
    .
    Reply to this
  • 3/4/2008 8:12 PM bird54 wrote:
    FABRICATION of FACTS like alleging a "court case" -- is different to INTERPRETATION of FACTS --

    Example of FABRICATION of a FACT --

    Sarah's fabricated allegation that an "investigation" associated with BROWN & STENGER is alleged 'as fact' to be a "court case" --
    http://alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-871384

    Sarah -- when challenged with the reality that there is, 'in fact' no evidence whatsoever for a "court case --
    http://alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-871572

    -- Sarah attempts 'disclaimer-busting' negative humor which she calls "sarcasm" as a defense for her fabrication -- for example --
    http://alliesvoice.com/2008/02/04/allies-voice-diabetes-does-not-discriminate--so-why-should-mississippi.aspx#comment-815377


    Example of INTERPRETATION of a FACT --

    The JDRF was not responsible for implementing C-peptide testing for all Diabetics in 1972 -- DOCTORS were and still are -- MD's who have taken the Hippocratic Oath.

    This is not LATERAL THINKING -- a type of thinking which Sarah appears to 'demand a ban' for?

    It is -- FIRST DO NO HARM.
    http://www.amazon.com/First-Do-No-Harm/dp/B000068MBW/ref=sr_1_1?ie=UTF8&s=dvd&qid=1204334803&sr=8-1

    It is a matter of reasonable example that Dr Dean could have used C-peptide testing to work her 'diabetic dilemma'? WHEN WILL SARAH ADMIT THAT?

    You agree with that?

    http://alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-863190


    BUT Sarah seeks to divert responsibility away from herself and onto the JDRF for 'lack of C-peptide endorsement' and apparently refuses the reasonable INTERPRETATION -- that the responsibility for NOT maximizing her own beta-cell C-peptide lies with her MD's from the moment she was diagnosed 'insulin-dependent' and NOW, with the benefit of adulthood, with herself -- on a daily basis -- demanding the support of her licensed medical experts to ensure that she maximizes her OWN beta-cell C-peptide production ?

    Sarah cites 2 historical papers which were available to MD's long before Sarah was 'diagnosed' -- for the importance of minimizing GM insulin for maximizing beta-cell C-peptide -- but Sarah would rather start a legal action against the JDRF than challenge her own MD.
    http://alliesvoice.com/2008/02/28/allies-voice-hundreds-of-thousands-squandered-from-jdrf.aspx#comment-861908

    Sarah alleges: "-- Now, if we can only prove that JDRF had supporting evidence that c-peptide could reduce complications (complication treatment is one of their goals), and they suppressed this or did not pursue it, then I think we have a case. it would be nice if some of those will law degrees could help me out here! -- It has been known that C-peptide (endogenous insulin secretion) may be linked to reduced complications for some time now..in fact, since the late 70's!"

    INTERPRETATION?
    Reply to this
  • 3/6/2008 1:32 AM Ashley wrote:
    Allie,
    have you ever heard of this Ominpod Pump???

    www.myomnipod.com
    Reply to this
  • 3/7/2008 12:15 PM Allie Beatty wrote:
    Hey Sarah,

    -How do your daily doses compare to using "Human" insulin? When I first began on pork (May 2007) – I was taking the same daily amount as I was on rDNA synthetic human. I was having night lows – so my daily dose ended up being less (about 20%) on pork insulin.

    -Has your ability to detect hypoglycemia improved? My perception of lows has increased substantially. When my blood sugar is dropping I’ll get the symptoms of slight sweating, heart palpitations, tingling sensation around my lips – the things I hadn’t felt since I was newly diagnosed – in 1985!!

    -How many injections per day do you take, and what is your control like? I take 2 injections a day. One in the morning of Regular and NPH – yes, I can MIX THEM!!  And one in the evening – Regular and NPH, again. If I’m running high in the middle of the day – I’ll take a shot of Regular.

    -Have your hypoglycemic episodes gotten worse, stayed the same, or improved? I have more hypos but never as threatening as they were on rDNA synthetic human. I’m aware of the hypo coming on because my body alerts me in ways that I haven’t experienced in almost 23 years. I’d say the safety factor has increased exponentially on pork insulin.

    -Did you develop lipotrophy or hypertrophy? None, whatsoever. I DID develop swelling of tissue (lipotrophy) in my legs when I was first diagnosed and using rDNA synthetic human insulin.

    -Does animal insulin last as long (less preservative?) The duration profile of the NPH is pretty accurate with the onset within 1-2 hours, peak in 6-8 hours and duration of 12-18 hours. This tends to be catalyzed by exercise and the types of foods consumed throughout the day. The Regular is very predictable, with onset within 30 minutes, peak in 2-4 hours and duration of 6-8 hours.

    -If you "feel" better, can you describe how? I can actually FEEL – not the finger FEEL, but the emotionally fulfilling FEELINGS. On pork insulin I immediately felt a calming effect of “control”. Within the first few days on pork insulin I could estimate, within 20 mg/dL (about 1.0 mmoL/l) what my glucose reading would be after injecting. Life on animal insulin is far more predictable than rDNA ever allowed. I feel safer. I feel more controlled. I feel cheated that it was not available for me from DAY ONE – July 5, 1985. The doctor and my parents decided, based on marketing, that it was “better” for the treatment of my newly diagnosed Type 1 diabetes. Hogwash! Now I know better and I hope to give people the ability to decide for themselves – what insulin is better for their diabetes management.

    -Do any of you use animal insulin in a pump? I used the Regular in my pump for the first few weeks to establish the suitable basal needs. The pork worked just fine in the pump – no clogging whatsoever!

    -Have any of you had a positive c-peptide test *after* animal insulin, and/or how were your antibodies affected? I’ll be blogging my annual follow-up in June 2008
    Reply to this
  • 3/7/2008 9:00 PM Nicholas Dynes Gracey wrote:
    .
    WHY should the JDRF sponsor this NOW?
    .
    CAREFULLY ALTER your DIETARY DIABETES PROTOCOL "DDP" to HELP MINIMIZE your INSULIN REQUIREMENT (?) in order to consciously help MAXIMIZE your Beta-Cell Insulin "BCI" production in response to Transient Supernormal Glycemia "TSG" which stimulates both BCI production and Beta-Cell C-peptide "BCC" production (?) ... and measure your YEARLY or QUARTERLY results ... with regular "STIMULATED C-PEPTIDE test" (?) ...

    YOU GOTTA SEE THIS VIDEO !!!

    www.NicholasDynesGracey.blogspot.cOM/2008_03_05_archive.html

    YOU GOTTA SEE THAT VIDEO !!!


    NB '...it has been found that by carefully adjusting the diet and the dose of insulin, 'ALL Diabetics' may be maintained sugar-free ...'


    Nobel Lecture, Frederick G. Banting, September 15, 1925 {www.tinyurl.com/2xrb8n & www.tinyurl.com/24eqyo} '...Regardless of the severity of the 'T1A diabetes', it has been found that by carefully adjusting the diet and the dose of insulin, 'ALL Diabetics' may be maintained sugar-free. Since this is possible, it is to be strongly advocated, because we have abundant evidence for the belief that there is regeneration of the islet cells of the pancreas when the strain thrown upon them by a high blood sugar is relieved. The increase in tolerance is evidenced by the decreasing-dosage of artificially administered insulin. In fact, in some moderately severe cases, the tolerance has increased sufficiently that they no longer require insulin...'


    OR


    LoveDiabetes.cOM Lecture, Nicholas D. Gracey, Sunday, 02 March, 2008 {www.tinyurl.com/ywmoyn} ...
    "...when the natural 'down-regulation' adaptations {www.tinyurl.com/2po68s} thrown upon them by dehydration {www.tinyurl.com/ypozqv} and Relative HYPOglycemia Distress 'RHOD' {www.tinyurl.com/2uxb99} is relieved. The increase in tolerance is evidenced by the decreasing-dosage of artificially administered insulin. In fact, in some moderately severe cases, the tolerance has increased sufficiently that they no longer require insulin; [aka 'CURED']?..."


    REFERENCES:-

    > 0180 www.tinyurl.com/3xtff9 {T Deckert ~ Good guidance of T1A = more natural BCI & BCC-peptide SECRETION ~ '...T1 Diabetics (for 25+ years) with Beta-Cells secreting Insulin and C-peptide had significantly less severe retinopathy & nephropathy than T1 non-Secretors...'}

    > 0178 www.tinyurl.com/2krkv3 {T Deckert ~ MINIMIZING Non-Human INSULIN dosage = MAXIMIZES natural BCI & BCC-peptide SECRETION ~ '...T1 Diabetics (for approx 31 years) with a low daily insulin requirement (less than 0.50 units/kg body weight) still have Beta-Cells secreting Insulin & C-peptide ... in 24% of the Patients. Severe retinopathy was lower in the Secretors than in the non-Secretor group...'}

    .
    …Warm thanks & Adrenalin Love
    Nick Gracey, BSc(Hons) Medical Biochemistry, Birmi