Allies Voice: The Truth about Diabulemia
Enough is enough! I'm tired of reporters and journalists contacting me about my experience with "diabulemia" only to watch them cower away from reporting to cause of the condition. I volunteer my time to give them the details of how and why. I lament about the fifteen years of my life battling the physiological punishment and mental torment my family, friends and I endured.
Does anybody realize how confusing it is to feel worse when you attempt to control a disease that cannot be controlled? Talk about a maniacal frenzy. The choice to take less insulin was an opportunity cost I anguished every day. I wanted to be free from the imminent dangers that lurked around every corner of insulin-dependent diabetes. I was tired of failing with the tools my doctors prescribed to tame the beast of diabetes treatment. Is it a crime to live your life the way you feel best? Butterflies have an average of 10 days to make the most of life. Thanks to insulin -- we have a few more days on the count. Why not choose the type of insulin that will give you greater enjoyment and more protection throughout liife? Just a thought.
It was a vicious cycle of high sugars, incessant thirst, and disappointing doctors' appointments. The upside was I knew I'd never run the risk of my parents having to get that phone call. I knew I'd never end up "dead in bed". I knew I would never cause a car accident because my sugar dropped too low behind the wheel. I knew I could function more efficiently with higher numbers than with DCCT unrealistic expectations. Speaking of - did you know the DCCT dropout rate was over 50%? Do you think the conventional therapy group had the choice to dropout? Don't shoot the messenger. Please consider the following information NO INVESTIGATIVE REPORTER has the audacity to publish, for fear they'll lose their top dollar advertisers - Big Pharma.
When I read the Montreal Gazette article titled "A diet that could kill"- I could no longer bite my tongue about this atrocious blame-game that has gone on far too long! Parents from the UK, parents in the US, neighbors, friends, and complete strangers have reached out to try and help themselves and help loved-ones in coping and find their way out from the dark, shameful world of insulin skipping. The difficulty in this pursuit of happiness is the sad fact that the extinction of animal insulin was a business decision from the very industry that has played an integral part in the development of the life-saving hormone. But how many times you can reinvent the wheel?
Starting back in 1988, about 5 years after the introduction of biosynthetic recombinant DNA human insulin - the phenomenon of patients taking less insulin resulting in diabetic ketoacidosis was on an exponential incline. Before rDNA biosynthetic human insulin the existence of "diabulemia" was nearly unheard of - it didn't even have the catchy name "diabulemia". Nowadays we're just another token Britney Spears story with a side of diabetes. Headlines sell.
Recombinant biosynthetic human insulin has NEVER proven its superiority over highly purified natural insulin (beef and pig). Please see Scott Strumello's blog reviewing the book that chronicles it all, "Invisible Frontiers: The Race to Synthesize a Human Gene" In fact, the symptoms of hypoglycemia were obvious to patients with glucose levels of 61 (using pig insulin), as compared to 44 (using human insulin). Click here to review the study.
On the surface, the easiest diagnosis is to blame the patient for having a desire to lose weight. But is that the cause or is that just the effect of an inefficient medicine? The story reporters are giving you about "diabulemia" is protecting their advertisers from exposing the crap that they sell you. I hear you saying "watch your language, Allie" - but the truth is their insulin is made by E.coli. Their insulin is made to absorb into your body at super-human speeds. Their insulin starves your brain of vital neurotransmitters to convey IMPORTANT MESSAGES like sugar is falling - need help! Natural-sourced insulin was more capable of allowing these triggers. .
Nowadays, for the sake of big profits for Big Pharma - they've chosen to forsake the quality of life for people with insulin-dependent diabetes for the bottom-line. This is going to be a job where one must fight fire with fire. Match please.
- Support "Allies Voice" and SUBSCRIBE - it's free!
- Study evaluating the symptoms of hypoglycemia - a comparison between porcine and human insulin
- The Montreal Gazette article titled "A diet that could kill"
- Diabetes Health Magazine article Animal Insulin—An Endangered Species?
- For more information on animal-sourced insulin see The Insulin Dependent Diabetes Trust site
- See Scott Strumello's review of "Invisible Frontiers: The Race to Synthesize a Human Gene". The book summarizes the scandalous tale of how biosynthetic human insulin was able to cut the line and jump onto shelves in record time without a proven safety record, or substantiated claims.
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Thank you for speaking about this Allie. Referring to Genetically Modified DNA Insulin and how there has been an increase in the number of people who are on it and not able to feel symptomatic of Low Blood Sugars any longer.
I have had more broken bones, broken teeth, scars and open skin infections because of Blackouts and Loss of Consciousness related to Hypoglycemia Unawareness.
I continue to test my Blood Sugars at least 10X/Day but this is no guarantee or protection.
I do know that I could also wear a CGMS Device,which is very costly. A better idea would be to start at the source. The source in this case is Insulin that has had C-peptide deleted from it along with other substances that were found in Bovine/Porcine derived Insulin.
C-peptide is believed to have made it possible for the person experiencing Low Blood Sugar to be able to experience "early warning symptoms" so as to alert in time and prevent any major loss of consciousness.
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BetterCell,
I am so sorry to hear this! You are right about starting at the source of insulin. Please check out my website at www.diabetesdoneright.com. Also, you may personally email me from there.
Hang in there, help is on the way!
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Yikes Allie! What you say scares me and makes sense. As a fellow "diabulemic," I can relate to these issues but I've always thought about it only as it pertained to me, not the industry at large. I've always thought about how I struggled with issues of control through food and insulin manipulation/obsession because I didn't have any other choice as a woman with type 1. But now you're making me think maybe I should have choice, maybe it's me whose being manipulated? After struggling for weeks with high blood sugar readings (a bad bottle of insulin? an infection? who knows?) I don't like to think that way, it frustrates and scares me to be so dependent on something that may not be my best option.....
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The decision to run your Sugars High rather than low is a decision that I have chosen against the advice of my doctors and even my own mother. I support what Allie is saying. I think this was an awesome entry.
Allie I hope you are doing well in florida!
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Hey Allie,
What a great blog! You are so right about this. I remember taking the beef insulin and it was powerful. I did not even need to take very much of it...1-4 units of NPH once a day. We only had urine testing back then so I did not know what my glucose was at the time. However, you knew immediately when the blood sugar was coming down. I basically trained my brain to treat it right away. I am glad I did, since I noticed with the synthetic insulin you have to stop your task at the first sign of a low. You cannot keep putting it off or lay down if you feel tired. You must treat the low IMMEDIATELY.
For me personally, there is a huge difference between the beef insulin I use to take and this synthetic stuff.
And yes the synthetic insulin is a weight gainer. Thanks again, for speaking the TRUTH!
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Thank you, as usual, Allie, for your research and your passion on behalf of all of us. This is such important information!
Be well.....Judith in Portland
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Kelly wrote:
"--Bird54 - you asked: "So why do you T1Ds continue to blame T2Ds for their disease?" My response: jealousy. From my experience watching a family member with T2 abuse his body, I can only watch and wish I had his problem to solve instead of my own antibiotic-induced "T1". I'd trade places with him in a heartbeat. --"
http://alliesvoice.com/2008/02/04/allies-voice-diabetes-does-not-discriminate--so-why-should-mississippi.aspx#comment-822314
Hi Kelly,
Was it drug 'abuse' OR eating to compensate-for and prevent -- brain/nerve glucose starvation (caused by a rapid reduction of blood glucose concentration)?
WHY do you not make a conscious distinction between the two issues and instead apparently allow sub-conscious discrimination for T2 'self-abuse'?
If a T2D is HYPOglycemia-drug-treated surely you would expect more hunger to prevent relative-HYPOglycemia-distress?
If a T1D is HYPOglycemia-drug-treated, for example GM insulin, surely you would expect more hunger OR diabulimia (T1 'self-abuse') to help prevent relative-HYPOglycemia-distress?
http://en.wikipedia.org/wiki/Diabulimia
HOW can you make a distinction between T1D being induced with OR without relative-HYPOglycemia-distress?
> 1207 www.tinyurl.com/399utj [Halle Berry weans from type 1 (less insulin) into type 2 (more beta-cells) / "The Gracey HYPO-thesis" / relative-HYPO-glycemia-Distress ... 'the avoidable CAUSE of type 0 / 1B / 2 / 1.5 / 1A / 2A / 3 / 4 diabetes appears substantially identical'].
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Hi Bird54,
I'm not picking a fight. I'm reporting my own experience with honesty to give one reasonable explanation in answer to your question.
For me, watching a T2 family member eat poorly and not attempt to improve his condition, etc. is hard to watch when I'm trying so hard and my challenge so much more difficult. His eating isn't "drug abuse" or "compensating for brain/nerve starvation", it's much more simple than that: he's more attached to his eating habits and what he gets out of that emotionally than being attached to curing his T2 condition.
I don't apply this situation to every T2 whatsoever, just this one T2 who happens to be in my family - you can't extrapolate. I'm offering one possible explanation, one of which I am sure is among many. That's it.
Lastly, to be clear on my position. I don't buy the "Gracey HYPO-thesis". Reduced food and increasing water isn't it, (although reducing BMI does improve insulin sensitivity). When I started blogging on The Diabetes Blog, I engaged Nick on his theory, tracking down and reading every paper he referenced to evaluate his theory for myself. In my opinion, his theory in and of itself is misdirected. It doesn't hold up to scrutiny or the evidence - so many of the papers he referenced were irrelevant or just plain poorly done. It might make sense for some T2s, but I doubt T1s in general.
In my opinion, his theory needs to be reworked. There is an element in his theory though that I believe does hold water. Not HYPO directly, but zinc deficiency. On your question, "how can I make a distinction between T1D being induced with OR without relative HYPOglycemia-distress?" Zinc deficiency, I believe, is the culprit in my own case, setting the stage for hyperglycemia. It's zinc, not insulin, which triggers the liver to secrete glycogen (Nick by the way referenced a very good paper on this). If someone happens to be zinc deficient, which for example, most college students are, and then happens to take a drug that binds remaining zinc, for example Norfloxacin as I did (a fluoroquinolone antibiotic), the remaining zinc is bound by the Norfloxacin. This gives the body a "pump-fake" of sorts. It's zinc, not insulin, that tells the body to secrete glycogen. Bind all the zinc and it tricks the body into thinking it's experiencing a hypo. The liver responds and hyperglycemia results because receptors are bound. In my case, when diagnosed, my c-peptide levels were normal, my GTT was normal, but I was inexplicably severely hyperglycemic 2 days after taking Norfloxacin. In my case, they literally said: "You're not a T1. You're not a T2. But, you're hyperglycemic, let's throw some insulin at it." They did. My bg came down. But, the kicker is: exogenous insulin suppresses endogenous insulin. Over time, it creates insulin dependence. At this point, I think I'll have to coin my own theory. I'll call it TOXINT1 - or TNT for short.
Food for thought.
Kelly
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I agree with everything you have said Kelley.
You are correct!!
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Rant On! I remeber when they took me off of pork insulin and I have had allot of troubles since. I belive your right, I know it and I dont mind the rant and wish more people would listen.
I gave up on a cure a while ago when I realized that the reson they will not have a cure is because they already have one. That the reson the cure will never come out is because there is no money in it, and it would leave millions without jobs. So suffer because of we create. It is not right, and what can one do but loose hope and know that this is going to kill me.
You have mentioned before about getting back on animal insulin, but where can I start to get it again?
I wish you well.
Robert
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Robert,
I'm curious. Why don't you get back on pork insulin? You can do a personal import from WockhardtUK or mail order from Canada (if you don't want Isophane). I'd love to hear how you feel the insulin is different. I'm just now switching to porcine after always being on GE human.
Kelly
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The things I resent most about diabetes: (1) the confusion that is perpetrated by identifying diabetes as a single disease; (2)the artificial "goal post" that the medical establishment establishes (and then moves) to describe "normal" blood sugar and ideal bG numbers; and (3) the removal of a broad range of effective tools (various formulations of natural insulins) under the guise: "it's "merely a business decision."
Robert--being the conspiracy theorist that I am, I can believe--like you--that there may indeed already be a cure. But where's the profit for pharma/medicine?
Sadly, diabetics who have never used natural insulins HAVE NO BASIS FOR COMPARISON. They look askance at older diabetics, who have experienced both the "old stuff" and the "new stuff" and casually advise--"get over it . . . it's gone and it's not coming back." I think it speaks volumes that Canadians,Europeans, and South Americans still have at least a limited "freedom of choice" which is sadly lacking in the U.S. A doctor from Europe once told me that he visited the insulin manufacturer in Poland--poor little Poland--and asked why his company continued to produce animal insulin. His answer was refreshing: "Because we have some patients who need it, or who want it, and as long as they do, we will continue to make it . . . it's the right thing to do [for our citizens]!
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Allie--
I remember on a past blogsite to which you contributed, you had at least one article on diabulemia. If my memory doesn't fail me, you received a rather nasty comment from a reader who claimed: "There is no such thing as diabulemia! Hrumph!" I guess until the NY Times describes the condition, it isn't real??
I remember several years ago, when people (both professional and lay) informed me that there was "no such thing" as hypoglycemia unawareness or dead-in-bed syndrome. My, how things have changed. Sadly, vindication brings us no closer to problem resolution; and with such dire consequences attaching to these newly-defined terms, saying, "I told you so" has such a hollow ring. No high-five for being right (and perhaps ahead of the curve), but perhaps a feeling of opening some tightly shut minds?
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Melody, "Shut Minds" are unable to open.
The "I told you so People" might already have succumbed to Dead In Bed Syndrome or continue in the Dark Corridors of Hypoglycemia Unawareness.
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.
IF ANTIBIOTICS CAUSE ... RELATIVE-HYPOGLYCEMIA-DISTRESS
WHAT CAUSES DIABETES ?
> 1107 www.tinyurl.com/2rxvq5 [...antibiotics are widely employed in treating infectious diseases ... reports of either hyperglycemia or hypoglycemia have appeared in the medical literature ... hypoglycemia usually occurs within the first three days of treatment ... hyperglycemia often occurs later in the treatment course. The hypoglycemia may be profound and difficult to manage. We report 4 patients with hypoglycemia ... and review the relevant literature...(www.tinyurl.com/yoeht6)]
WHY?
5 LAYERS OF EVIDENCE...
In the light of: Salzer's 1966 "relative-HYPOglycemia" & Neuro-Psychiatric research, Rosenbloom's 2000 re-hydration controversy, Dosch's 2006 "Psycho-Neuro-Immunology" [PNI] type 1A research, Ristow's 'beneficial glucose-insulin-resistance' research AND ... Eisenbarth's NEW 2008 "Auto-Immunity to Human beta-cell insulin" research ... how reasonable is the Gracey HYPO-thesis?
www.en.wikipedia.org/wiki/Psychoneuroimmunology
> 0367 www.Relative-HYPOglycemia.com [Allan Cott c/o Harry M Salzer]
> 0100 www.tinyurl.com/ypozqv [RosenAL@peds.ufl.edu ~ Arlan L Rosenbloom].
> 1206 www.tinyurl.com/2odurt [HMDosch@sickkids.ca]
> 1007 www.tinyurl.com/3aypqg [MRistow@mristow.org]
> 0108 www.tinyurl.com/3bqcm9 [George.Eisenbarth@uchsc.edu].
Any comments upon these ideas and/or this HYPO-thesis in relation to the CAUSE of diabetes would be most appreciated...
> 1207 www.tinyurl.com/399utj [Halle Berry weans from type 1 (less insulin) into type 2 (more beta-cells) / "The Gracey HYPO-thesis" / relative-HYPO-glycemia-Distress ... 'the avoidable CAUSE of type 0 / 1B / 2 / 1.5 / 1A / 2A / 3 / 4 diabetes appears substantially identical'; and Gracey's unified theory for the CAUSE & CURE of all diabetes].
…Warm thanks & Adrenalin Love
Nick Gracey, BSc(Hons) Medical Biochemistry, Birmingham University, UK, WATerian (C) MON.11.FEB.2008 @ 23:42hrs c/o DiabetesHealth.com & www.HYPO-thesis.com
.
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Hang on to your hat everyone, I took a new document to my doctor so I can order my animal insulin from England and guess what folks. My doctor who has helped me for the past two years in obtaining my insulin from England and knows that I can not tolerate animal insulin. Well today he calls me and asks me why do I need to take animal insulin when I could take humlin or humlog. Now he is questioning why I am taking animal insulin and why I can not take the humilin and humalog. After years of support now he is asking questions as to why I can not tolerate this insulin. So watch out people now your doctors will be questioning you as to why you cannot take the humalog or humilin insulin and will question even when in the past they supported you to switch back to the very insulin that is hurting people. This is in my opinion an aggressive why to try and get your doctor to not help with obtaining the very insulin you need. Please people who are ordering insulin tell you doctor that you need animal insulin otherwise soon no one will be able to get it because your so called health care purfessional will worry more about so called law suits than your help. Be sure to tell you doctor that you have no ill effects from this insulin and be sure to make sure that you have your doctor state tht you can not take or use the Humilin or Humolog otherwise they will try and convince you to not order animal and switch to the junk they now call insulin. I could not believe my ears when I heard this from my doctor. So please be careful how and what you say to they scumbags who call themselves health care doctors. I told him my A1C's are 5.6 to 5.9 and that is why I need my animal insulin. Wake up people they are trying to shut this door down.
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Making the World Safer for People with Diabetes
http://www.AlliesVoice.com
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Allie,
First, thanks for your blog. Second, in follow up - is that true? Are all "current GM insulins and insulin analogues 97% pure"? Do you know the purity of Wockhardt porcine? I've been meaning to follow up on this. That porcine wasn't "pure" was one of the many arguments my (former) endocrinologist tried to make to keep me in line and switch to analog insulin. I knew it wasn't true, but didn't have an exact number. I've also not read that it's more pure. Do you have references so I can follow up by chance?
Kelly
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Glen, Allie,
In response, yes, Glen, I do think they're trying to shut animal insulins down in the US to protect market share, but the UK isn't helping the situation either.
After months, I was finally ready to submit my porcine order and paperwork to Wockhardt when whammo, I looked again at Wockhardt's website to make sure they didn't change anything. They've added a new fifth requirement: the completion of a "Compassionate Use/Named Patient Supply: Drug Safety Agreement for Hypurin Insulin". It seemed innocent enough, intended to meet the UK's adverse reporting requirements - until I read the following statement on the third page, which a physician is "REQUIRED" to sign to get your order:
"I confirm that the patient is unable to tolerate any form of human insulin or analogue and therefore can not be treated with human insulin or with analogues. I am aware that the FDA will only consider the importation of bovine or porcine insulin (including Hypurin) for patients who can not be treated with human insulin or analogues."
The prior requirement before they required this form to be signed states that your physician has to sign that the insulin isn't available in the states, that it's medically necessary and that available insulins don't adequately control your condition. There's a HUGE difference between the two. I "can't be treated" with basal analogues because I WON'T put them in my body. I may be able to "tolerate" them for a while, but 10 years from now when I learn they've caused cancer, a definite possibility, I'll realize I couldn't tolerate them afterall. What happened to patient choice?
The statement by Wockhardt is wrong by the way. I called the FDA. They have a very good website that details its requirements: http;//www.fda.gov/cder/drug/beefandporkinsulin/default.htm#Q-6.
The FDA's requirements is that the drug has to be "medically necessary", "not available in the U.S.", for a person who "can't be treated with human insulin or its analogs", "be for personal use" and "not exceed a 6 months supply." You need the USDA permit (which took me 16 days to get by the way and they'll email it to you for the asking), a letter you write, this letter from your doctor stating medical necessity, the order form and now this new form.
I called Wockhardt and have emailed them 4 times. So far, I've received no response or acknowledgement of my email. I did however, see my physician today. I presented to her my research as to why I won't take Glargine or Detemir and showed her the new Wockhardt form. She signed it despite the form's problem because I need the insulin. The need outweighed the risk in her assessment. (And she's right.) She felt fighting the form would be too hard, that it's written by a lawyer. The kicker is, I don't want to send the form in because I fear the precedent it will set. Sending it in could make it more difficult for others to follow. My doctor is very special; most others are not.
Any ideas?
Kelly
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Doesn't anyone find the USDA and the FDA relationship to be dysfunctional, at the very least? The USDA should be concerned with agriculture, and their primary concern is BSE (mad cow disease) which they irrationally fear could be perpetuated by bovine and porcine insulin; nevermind the fact that the rDNA stuff uses bovine sources in the cell banks and cell culture, and the source for those elements is from parts of the animal far more likely to contain BSE than highly-purified (crystallized twice, and containing fewer contaminants than recombinant insulin) insulin itself.
The latest squabble between the FDA and USDA is over genetically-modified animals used primarily for human food consumption. The FDA says its perfectly safe to eat GM beef, pork, chicken and fish; the USDA says not so fast -- we believe it is risky. Where was the USDA when Monsanto began altering plants that impacted our ecosystem?
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Glenn, Kelly--
I, too, was perplexed at the "new" Wockhardt form. It appears that they may be attempting to intimidate doctors. Many doctors were reluctant to complete a 'medical necessity' statement--it took some 'doctor shopping' to find one willing to listen and assist. Now--with a papertrail to saddle them with potential liability--I expect most doctors to be much more circumspect in aiding us. Our job just got harder. IOW, now doctors will have to go "on record" in prescribing an unapproved--essentially illegal--drug. How many will risk not only financial liability, but perhaps even their 'right' to practice medicine. My question to Wockhardt is: How do you expect my doctor to answer questions that scientists/researchers have not yet answered satisfactorily.
Unfortunately, we witnessed corporate behavior at its finest when Lilly and Novo ARBITRARILY withdrew all natural insulins from the U.S. market. I wonder if this is Wockhardt's attempt to join them in infamy. Again, needful patients must navigate more hoops. (1) If our doctor (because of liability issues) won't write the "medical necessity" letter--we can't obtain the product. (2) If our doctor DOES write the letter, he risks liability at our hands and bureaucratic paperwork by reporting 'any and all adverse events.' (3) Since adverse events must be reported to Wockhardt, doesn't this just provide fuel to enable Wockhardt to ARBITRARILY refuse to sell to us?
Allie--Thanks for YOUR advice. Diplomacy does not rank high among my finer qualities. But in this case, I think discretion and courtesy will better serve me than outrage and complaint.
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Melody,
Yes, I agree, our job did just get harder - a lot harder. Your question is exactly mine - why did Wockhardt do this? Was it a stupid sentence mindlessly added by a lawyer or was it an attempt by Wockhardt to start phasing porcine and bovine insulin out entirely, first by justifying that no one is using it anymore (because no one could get approval anymore).
From what I've read about the UK system, however, their adverse reporting system (called Yellow Card) is much different than the U.S. system, which isn't mandatory like the UK's is. I don't think a U.S. physician would risk liability by reporting any and all adverse events to a mandatory system in and of itself. I think the problem is that the form is forcing physician's to state something that no one can know the truth of - can we "tolerate" the insulin? If I find out in 10 years I have cancer and can't tolerate it, will they then sell me the insulin? Gee thanks.
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As patients, we have ALL been relegated to the 'back of the bus.' Please remember the following:
(1) Wockhardt is trying to establish itself as an approved FDA pharmaceutical supplier in the U.S.; thus they are in a 'lapdog' role, subject to FDA pressure.
(2) Wockhardt IS corporately/financially in bed with Eli Lilly. Thus, they are also Lilly's pimp.
(3) Wockhardt's "new" corporate identity is centered on development of rDNA biologics in ALL areas of medicine. Therefore, as diabetics who NEED natural sourced insulins, we have become nothing more than cockroaches of patient society--disgusting, troublesome patients who deserve extermination.
Until all insulins are considered biologics, tested for bioequivalence on healthy and patient health groups, and required to go through rigorous BATCH TESTING (now absent for insulin products) the patient is nothing more than a dog waiting for the next batch of contaminated pet food imported from China. Our problem is and always has been--how do we get our medical professionals--and the rest of the world--to LISTEN and understand our problem.
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Kelly wrote: "-- His eating isn't "drug abuse" or "compensating for brain/nerve starvation", it's much more simple than that: he's more attached to his eating habits and what he gets out of that emotionally than being attached to curing his T2 condition. -- Lastly, to be clear on my position. I don't buy the "Gracey HYPO-thesis". Reduced food and increasing water isn't it, (although reducing BMI does improve insulin sensitivity). -- Food for thought. --"
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-824911
Hi Kelly (1 of 2 comments),
How do you know that for sure? Maybe you're sub-consciously discriminating. Is the person to whom you refer -- HYPOglycemia-drug-treated OR not? How can he cure his condition if his brain is being STARVED?
If a T2D is HYPOglycemia-drug-treated -- surely you would expect more hunger to prevent relative-HYPOglycemia-distress? T2D generally have more insulin-dependent tissue mass than a T1D and therefore can be reasonably be expected to SUFFER more from HYPOglycemia-drug 'abuse' OR have more appetite for eating to compensate-for and prevent -- brain/nerve glucose starvation (caused by any rapid reduction of blood glucose concentration)?
Also, just to clarify--HOW can you make a conscious distinction between "your own" T1D being "antibiotic-induced" rather than diabetes being induced by one or more traumas (including antibiotics) -- all culminating in relative-HYPOglycemia-distress and consequent compensatory-HYPERglycemia (diabetes)?
Please help with the 'zinc' reference you refer to with a pubmed link? Are you referring to Lisa Landymore-Lim's hypothesis (www.atomichealth.co.uk/first.html). Isn't that is entirely compatible with the Gracey HYPO-thesis?
What do you say in response to Nick Gracey's most recent comment. Surely his HYPO-thesis is directly in agreement with your experience. Especially the sequence of events the Michael-Bronze@ouhsc.edu reference (www.tinyurl.com/2rxvq5) then the George.Eisenbarth@uchsc.edu reference (www.tinyurl.com/3bqcm9)? You seem to have been a diabetic created by being HYPOglycemia-drug-treated. What did/do your auto-antibody tests suggest? It is clear you were never a T1D at diagnosis & arguably are still a T2D. What if most T1D arises the same way?
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-824385
Why are you, a likely T2D to T1D 'convert', discriminating for a different cause for T1D & T2D? Nick Gracey has cited evidence that there is just ONE cause -- Have you even studied this 12/31/2007 edition? -- "The Gracey HYPO-thesis" (www.HYPO-thesis.com) -- "Relative-HYPOglycemia-Distress" ... 'the avoidable CAUSE of type 0 / 1B / 2 / 1.5 / 1A / 2A / 3 / 4 diabetes appears substantially identical'.
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Bird54,
Like I said, I'm not picking a fight. This will be my last post on this string.
Going down your list:
(1) You'll have to take my word for it. This is a close family member I see all the time. I see what I see. That's my impression for this single T2D.
(2) It isn't just about hunger. It's about what you choose to put in your mouth and what you choose to do with your body.
(3) I don't differentiate between T1s and T2s, or for that matter, T3s, T4s or T5s. There are likely dozens if not hundreds of causes of hyperglycemia and they may all be rooted to the same stem cause - ultimately, inflammation. I think that multiple traumas is likely; that sets the stage for the final trigger, e.g. lack of breastfeeding, early cereal introduction, early antibiotic exposure, early milk exposure, chronic emotional stress, zinc deficiency, and on.
(4) The zinc reference is: Zhou H, Zhang T, Harmon JS, Byran J, Robertson RP. Zinc, not insulin, regulates the rat alpha-cell response to hypoglycemia in vivo. Diabetes, April 2007; Vol. 54, No. 4, p. 1107-1112.
(5) I said I think Gracey's hypothesis is misdirected.
(6) I say nothing in response to Gracey's last comment. I'm tired of reading and re-reading his cutting and pasting ad naseum.
(7) My condition wasn't created by being HYPOglycemia drug treated. I already stated my theory on its roots.
(8) I've never been tested for auto-antibodies. I'm likely now positive however, given how long I've been taking insulin. At this point, testing for it wouldn't be helpful.
(9) As I said, my diagnosis was always difficult and confused. I was coined a Type 1.5. This was in 1987, when the term didn't exist.
(10) I'm not a likely T2 to T1 convert. I believe my now "diabetic" condition was induced by the administration of exogenous insulin following an acute toxic reaction to the Norfloxacin.
(11) I do think it's possible that most T1D arises in the same way. Antibiotic , or other drug, toxicity/trauma.
Kelly
Reply to this
Kelly wrote: "-- I'm reporting my own experience with honesty to give one reasonable explanation in answer to your question. -- Lastly, to be clear on my position. I don't buy the "Gracey HYPO-thesis". Reduced food and increasing water isn't it, (although reducing BMI does improve insulin sensitivity). -- Food for thought. --"
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-824911
Hi Kelly (continued 2 of 2),
Kelly as regards your comment -- "Lastly, to be clear on my position. -- Reduced food and increasing water isn't it, (although reducing BMI does improve insulin sensitivity)."
The Gracey HYPO-thesis highlights the benefits of "eating less OFTEN" and INCREASING glucose/insulin resistance (ie. REDUCING 'insulin sensitivity') which is substantially DIFFERENT from your apparent sub-conscious discrimination (and apparent refusal to even consider eating just 1 meal every day) or make a reasonable study of the HYPO-thesis (ie. some reasonable conscious DISTINCTIONS -- rather than pre-judgments).
I don't buy prejudiced "honesty" as an excuse for an unreasonable explanation for bias against -- any T2D or any reasonable hypothesis.
What is clear about your "position" is that you have made 'a judgment' without properly assessing the evidence before you. In a court-room your 'judicial decision' should be overturned on appeal, at the very least, because of your very 'apparent bias' and 'clearly not having reasonably considered the written submissions'.
Reply to this
I disagree.
Reply to this
BetterCell wrote:
"I agree with everything you have said Kelley.
You are correct!!
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-825329
Hi BetterCell,
Thanks for the 'first grade' comment. Have you analyzed and do you really understand "everything" that Kelly said? Apparently you don't otherwise WHY have you not replied to my previous comment?
http://alliesvoice.com/2008/02/04/allies-voice-diabetes-does-not-discriminate--so-why-should-mississippi.aspx#comment-820710
Reply to this
Because your mouth is too big and should be made smaller.
Reply to this
I agree with everything you have said BetterCell.
You are correct!!
Kelly
Reply to this
Hi Sarah--You said,
"I have increased my Vitamin D3 to 1500 i.u. daily (1.5 1000 i.u. tablets) and I am having constant lows and need less insulin for meals and highs....
I keep going low."
http://alliesvoice.com/2008/01/30/allies-voice-big-breasts-and-evolution.aspx#comment-810668
And you said,
"Vitamin D3 is an over the counter supplement. It is no more dangerous than what Gracey advocates as his "cure". That would be "drinking water" to "flush out the glucose".
http://alliesvoice.com/2008/01/30/allies-voice-big-breasts-and-evolution.aspx#comment-811119
My answer is this:
First, Vitamin D is not water soluble so it cannot be "flushed" out like excess vitamin C, glucose or urea.
Second, Vitamin D supplementation is not the same as sunlight.
Third, sunlight is safer than diabulima and your HYPOglycemia experiences with vitamin D tablets suggests that even diabulima may be safer.
Why Vitamin D is NOT the same as sunlight--
http://articles.mercola.com:80/sites/articles/archive/2008/2/12/why-vitamin-d-supplements-are-not-the-same-as-sunlight.aspx
"The assumption that vitamin D supplements will protect you against diseases associated with low vitamin D levels is incorrect, according to Australian researchers. The report found that vitamin D supplements are immunosuppressive and may actually make diseases worse.
Vitamin D Nuclear Receptor (VDR) influences the expression of over 1,000 genes, including those associated with diseases such as cancer and multiple sclerosis. According to the new study, supplemental vitamin D actually blocks VDR activation, which is the opposite effect to that of sunshine.
Instead of positively impacting gene expression, vitamin D supplements appear to suppress your immune system.
Vitamin D deficiency, the researchers pointed out, is likely not a cause of disease but rather is a result of the disease process. And increasing vitamin D intake may make the diseases worse.
The body regulates production of all the vitamin D it needs, the researchers said, and dysregulation of vitamin D by supplementation has been associated with many chronic diseases."
Reply to this
Hello Bird54,
I trust that you are well and happy. It seems as though you have an outdated or misguided source. The RDI for Vitamin D has been increased to 1000 i.u. by the CCS. This is suggested via supplementation. I believe this amount has been proven safe in the short term thus far.
However, there is no long term data on the optimal dose or side effects, but based on current studies, it appears as though the benefits likely outweigh any possible risks. Vitamin D looks very promising.
http://www.cancer.ca/ccs/internet/mediareleaselist/0,3208,3172_1613121606_1997621989_langId-en,00.html
As you know, modulating the immune system in autoimmune diseases is thought to be beneficial, and your article clearly says that this is a feature of what Vitamin D does.
Thank you for concurring with my beliefs. Vitamin D deficiency may play a role in the development of Multiple Sclerosis.
Certain VDR gene polymorphisms may play a role in the development of autoimmune insulin deficiency, and it is possible that people with these polymorphisms may benefit from higher Vitamin D exposure or supplementation. VDR polymorphism may explain why people with these diseases present with a Vitamin D deficiency, and why supplementation may be needed if they cannot supply enough without such.
Vitamin D supplementation of 2000 i.u. daily is currently being studied as a way to prevent autoimmune insulin deficiency in children at genetic (using HLA typing) risk.
2000 i.u. Vitamin D per day to prevent autoimmune T1DM:
http://www.clinicaltrials.gov./ct2/show/NCT00141986?term=vitamin+d+type+1+diabetes&rank=1
I think you will continue to see more articles and studies increasing the suggested RDI of Vitamin D in the future.
I am surprised that Dr.Mercola would be against a dietary supplement that shows so much promise in current research. I personally think it is better to prevent disease rather than treat the symptoms with drugs, but perhaps that is just me.
Regards,
Sarah
Reply to this
P.S. I am using Vitamin D3 (Sangster's brand) as my supplement. I am not sure why Dr. Mercola implied that D3 is only found in foods. ?
I guess only time will tell how Vitamin D supplementation will play into autoimmune diabetes prevention and treatment.
Reply to this
Bird54, after re-reading Mercola's comments, it looks like Dr.Mercola IS a fan of Vitamin D supplementation, but only D3. Which is the form I use, and the form I suggested to Allie via email privately.
I do not think I made that clear in my previous post, so I am doing so now. I use D3. Which Mercola seems to support.
This now makes more sense to me.
Thanks,
Sarah
Reply to this
Oh yes, I almost forgot...I just ran across an article for you Bird54!
I did find an newsclip based on a Swedish study that links higher glucose in non-diabetics with an increased risk of (some types of) cancer. It was in the latest issue of Diabetes Dialogue. I will write out the clip for you if you like. I believe you have been asking here for more information on this topic. I also suggest you contact the Expert Team at http://www.childrenwithdiabetes.com if you have not already done so.
To good health and happiness,
Sarah
Reply to this
BetterCell wrote;
-- "Because your mouth is too big and should be made smaller."
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-826278
Hi BetterCell,
And now a kindergarden comment? Or do you consider it first grade?
You think T2 diabetics suffer less than T1 diabetics from brain starving HYPOglycemic drugs just because they are bigger than you are? Do you blame T2 for eating too much rather than from their HYPOglycemia-drugs? Do you blame T1 diabetics for diabulimia rather than their HYPOglycemia-drugs? Are you blameless? Do people comfort eat in your company? Why?
Are you consciously making distinctions and showing your true colors OR was that an animalistic sub-conscious discriminatory comment akin to your apparent prejudice against T2DM and as such another comment made in hateful emotional haste?
Mouth too big for what?
Mouth made smaller how?
How are your comments linked to diabulima?
Do you do martial arts for defense or attack OR is it to help you feel safer when giving a person the 'bird' name?
http://en.wikipedia.org/wiki/Middle_finger
http://alliesvoice.com/2008/02/04/allies-voice-diabetes-does-not-discriminate--so-why-should-mississippi.aspx#comment-821108
Now please answer my comment.
http://alliesvoice.com/2008/02/04/allies-voice-diabetes-does-not-discriminate--so-why-should-mississippi.aspx#comment-820710
You should consciously love more OFTEN and improve your spiritual congruency.
You want love from people no matter what you say. OK
Reply to this
BetterCell wrote;
-- "Because your mouth is too big and should be made smaller."
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-826278
Kelly wrote:
-- " I agree with everything you have said BetterCell. You are correct!! Kelly"
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-826562
Hi Kelly,
And now a kindergarden gang bully comment? Or do you consider it first grade too?
You think T2 diabetics suffer less than T1 diabetics from brain starving HYPOglycemic drugs just because they are bigger than you are? Do you blame T2 for eating too much rather than from their HYPOglycemia-drugs? Do you blame T1 diabetics for diabulimia rather than their HYPOglycemia-drugs? Are you blameless? Do people comfort eat in your company too? Are you the reason why your relative allegedly comfort eats. Does your company really cause distress. Why?
Are you consciously making distinctions and showing your true colors OR was that an animalistic sub-conscious discriminatory comment akin to your apparent prejudice against T2DM and as such another comment made in HATEFUL emotional haste?
Mouth too big for what?
Mouth made smaller how?
How are your comments linked to diabulima? Are you a hippocrite? Or are you trying to illustrate why your relation may comfort eat at the very thought of the way you talk?
http://alliesvoice.com/2008/02/04/allies-voice-diabetes-does-not-discriminate--so-why-should-mississippi.aspx#comment-822327
I know a little boy whose mother is T1DM. The boy says sometimes his mom "goes crazy" and starts screaming. The boy runs into his bedroom and hides.
I know a T2DM who says she "turns into a #itch" when she skips meals. She yells at people.
T1 or T2 all suffer from relative hypoglycemia distress.
You should consciously love more OFTEN and improve your spiritual congruency.
You want love from people no matter what you say. OK
Reply to this
Bird54,
Of course it was. I offered it in jest to counter your rudeness to BetterCell. You sound so angry in all of your posts. Here's a comment I make not in jest. When you choose to write with curiosity and respect to those who post here, instead of anger or hostility, I'll respond. Until then, my boundary is drawn with you. You seem to want to create enemies on the wrong side of the battle line.
Kelly
Reply to this
.
ANTIBIOTIC HYPOGLYCEMIA >
RESCUED BY HYPERGLYCEMIA >
TREATED WITH GM INSULIN >
T2, T1.5 or T0 > T1A or T1B ?
www.tinyurl.com/2rxvq5 > www.tinyurl.com/34kb6f > "You're not a T1. You're not a T2. But, you're hyperglycemic, let's throw some insulin at it." > www.tinyurl.com/ytdkq2 > www.tinyurl.com/yoeht6
WHY?
5 LAYERS OF EVIDENCE...
In the light of: Salzer's 1966 "relative-HYPOglycemia" & Neuro-Psychiatric research, Rosenbloom's 2000 re-hydration controversy, Dosch's 2006 "Psycho-Neuro-Immunology" [PNI] type 1A research, Ristow's 'beneficial glucose-insulin-resistance' research AND ... Eisenbarth's NEW 2008 "Auto-Immunity to Human beta-cell insulin" research ... how reasonable is the Gracey HYPO-thesis?
www.en.wikipedia.org/wiki/Psychoneuroimmunology
> 0367 www.Relative-HYPOglycemia.com [Allan Cott c/o Harry M Salzer]
> 0100 www.tinyurl.com/ypozqv [RosenAL@peds.ufl.edu ~ Arlan L Rosenbloom].
> 1206 www.tinyurl.com/2odurt [HMDosch@sickkids.ca]
> 1007 www.tinyurl.com/3aypqg [MRistow@mristow.org]
> 0108 www.tinyurl.com/3bqcm9 [George.Eisenbarth@uchsc.edu].
Any comments upon these ideas and/or this HYPO-thesis in relation to the CAUSE of diabetes would be most appreciated...
> 1207 www.tinyurl.com/399utj [Halle Berry weans from type 1 (less insulin) into type 2 (more beta-cells) / "The Gracey HYPO-thesis" / Relative-HYPOglycemia-Distress / The avoidable CAUSE of type 0 / 1B / 2 / 1.5 / 1A / 2A / 3 / 4 diabetes appears substantially identical / A unified theory for the CAUSE & CURE of all diabetes].
…Warm thanks & Adrenalin Love
Nick Gracey, BSc(Hons) Medical Biochemistry, Birmingham University, UK, WATerian (C) TUE.12.FEB.2008 @ 23:50hrs c/o DiabetesHealth.com & www.HYPO-thesis.com
.
"The Gracey HYPO-thesis" for the CAUSE & CURE of diabetes... www.tinyurl.com/32z33w
CURE auto-immunity [100pc Fresh Organic Raw Liquidiet]... www.tinyurl.com/3cw8eu
CURE diabetes [Relative-NormoGlycemia (RNG)]... www.tinyurl.com/2guhfd
CURED diabetes [Relative-HYPOglycemia-Distress (RHOD)]... www.tinyurl.com/yno298
PREVENT ... HYPOglycemia-Unawareness (HOU)... www.tinyurl.com/2y3zpq
PREVENT ... Relative-HYPERglycemia-Distress (RHRD)... www.tinyurl.com/ynpp4g
PROVIDE ... Relative-NormoGlycemia (RNG)... www.tinyurl.com/3bcn7j
Eat not less but less OFTEN... www.tinyurl.com/299t3f
Eating less OFTEN is profoundly more healthy than eating less... www.tinyurl.com/ys63gk
Eating too OFTEN sustains & CAUSES all diabetes... www.tinyurl.com/2j7p3t
PROTECT from HYPERglycemia-Dehydration-Coma (HRDC)... www.tinyurl.com/2mcyx6 &
...from HYPOglycemia-Distress-coma (HODC) ... FOR Liquidiet... www.tinyurl.com/2ohk2a
Diabetes is not a disease ... www.tinyurl.com/2uxb99 ... diabetes is the CURE...
...for ... Relative-HYPOglycemia-Distress (RHOD)... www.tinyurl.com/36qxn3
Eating-less-OFTEN-Fasting-more-OFTEN-Loving-more-OFTEN
http://www.DiabetesHealth.com/read/2007/11/29/5564.html#comments
AdrenaLINE ... www.tinyurl.com/29kvda ... "I-Fast-Every-23hours-45minutes-OrMore"
.
Reply to this
Nick,
Would you kindly use complete sentences so I don't have to guess what it is you want to say? While I value your input, you're making me work way, way too hard!
Thanks,
Kelly
Reply to this
Nick,
Because of the length of your post, I'm going to respond in pieces.
First, in your initial list of short unnamed links (www.tinyurl.com/2rxvq5, www.tinyurl.com/34kb6f, www.tinyurl.com/ytdkq2 www.tinyurl.com/yoeht6), you list a few of the papers on fluoroquinolone-induced dysglycemias as well as an internal link to Allie's blog as well as one new paper I hadn't seen yet studying fluoroquinolone-induced dysglycemia litigation. (Sidenote: it would have been really helpful if you had ID'd these in a sentence for readers - I would have gone to the last paper immediately.)
To flesh out your list for those interested, here's a short list of mine to add to the research link you gave:
(1) Yip C, Lee AJ. Gatifloxacin-induced hyperglycemia: a case report and summary of the current literature. Clinical Therapeutics, 2006; Vol. 28, p. 1857-1866.
(2) Zvonar R. Gatifloxacin-induced dysglycemia. American Society of Health-System Pharmacists, 2006; Vol. 63, p. 2087-92.
(3) Park-Wyllie, LY et al. Outpatient gatifloxacin therapy and dysglycemia in older adults. N Engl J Med, 2006; Vol. 354: p. 1352-61.
(4) Blommel AL, Lutes RA. Severe hyperglycemia during renally adjusted gatifloxacin therapy. Ann Pharmacother, 7 June 2005; www.theannals.com, DOI 10.1345/aph.1E679.
(5) Khovidhunkit W, Sunthornyothin S. Hypoglycemia, hyperglycemia, and gatifloxacin. Annals of Internal Medicine, 21 December 2004; Vol. 141; p. 969.
(6) Landymore-Lim L. Poisonous Prescriptions. North Strathfield, Austrailia: Atomic Health, 2006.
(7) Zhou H, Zhang T, Harmon JS, Byran J, Robertson RP. Zinc, not insulin, regulates the rat alpha-cell response to hypoglycemia in vivo. Diabetes, April 2007; Vol. 54, No. 4, p. 1107-1112.
(8) Ho E, Quan N, Tsai Y, Lai W, Bray TM. Dietary zinc supplementation inhibits NFkappaB activation and protects against chemically induced diabetes in CD1 mice. Experimental Biology and Medicine, 2001; Vol. 226, p. 103-111.
I was aware of some of the litigation concerning fluoroquinolone-induced dysglycemia, but I didn't realize it was getting 400 hits a day on Google, which is the subject of the last link you listed. This paper states: "In conclusion, we found that publication of an article in a general medical journal can dramatically influence Internet-based solicitation of litigants for personal-injury claims." What they miss - is that there ARE 400 hits a day on this topic and that people WANT to sue (rightfully so I might add). I think this is very much just the tip of the iceberg. Levoquin, Gatifloxacin, Norfloxacin - there are 12 of them and most of them are all basically identical in structure and likely causing the same degree of problem.
Kelly
Reply to this
Nick,
After your short list of links, you next state: "WHY?"
In response, I need more help understanding. WHY what? You're making me guess and I have no idea. WHY is hyperglycemia caused by fluoroquinolones? WHY is hypoglycemia caused? WHY does the Gracey HYPO-thesis solve these riddles? I can come up with 100 questions. Would you kindly be more specific?
Thanks,
Kelly
Reply to this
Oh Nick,
You’ve got good dots to connect – some of the research you have pointed me too is great stuff - but the way you’re connecting them to support your theory is utterly maddening.
As proof for your HYPO theory, you reference a paragraph long story about Halle Berry posted on a music, film and entertaining website. For those unaware, Halle Berry was apparently recently diagnosed with T1D after fainting. She then apparently changed her diet, “weaned” herself off insulin, and now calls herself a T2D, controlled through diet and exercise. Nick states that her diet was “designed to minimize inflammation and to maximize healthy beta-cell activity mass." The problem is: there’s no proof that her diet was designed to do anything associated with inflammation or to “maximize healthy beta-cell activity mass”. This is Nick’s speculation. It isn’t scientific proof whatsoever of his theory. The only element of truth I can see is that they took her off insulin. And the research evidence does support that that action would have the effect of maximizing beta-cell survival, since the administration of exogenous insulin suppresses the secretion of endogenous insulin. (The "use it or lose it" theory.) The problem is, it has NOTHING to do with Nick’s theory, nor does it serve to support it. I wish it did, but it doesn’t.
I had a similar experience, by the way. When I was diagnosed, had my doctors taken me off insulin and focused me on diet and exercise, I have strong confidence I could have weaned myself off insulin too. I had to “work” very hard to stay on insulin for years.
Nick, you further go on to reference Berry’s “belief and experience that a change in Dietary Diabetic Protocol (DDP) can help a type 1 Diabetic gradually wean off GM insulin.” Here again, the term “Dietary Diabetic Protocol” or DDP as you call it is bogus. It appears to be a phrase that you have coined to strengthen the scientific “evidence” of your theory. You’re putting words in Berry’s mouth. Not sure she’d appreciate that by the way.
Next, you state: “Did Halle Berry make dietary changes that improved her health for becoming pregnant ... and may such a DDP help heal Diabetics by reducing the incidences of relative HYPO-Glycemia Distress? Apparently Halle's Doctor was aware of Michael Dosch's, December 2006, breakthrough Canadian research [identifying a psycho-neuro-immunological imbalance] that suggests that an 'activating-beta-cell-diet' / DDP can actually reactivate a Diabetic's beta-cells.”
Reply to this
(continued)
ARG! First, there is no connection between what Halle Berry did and your theory of relative HYPO-glycemic distress. In fact, I’d offer, having experienced it myself, that Halle Berry will be back on insulin by the third trimester of her pregnancy. (The body's demands for insulin increase hugely over the course of pregnancy.) Second, this is a great paper. For those looking for it, it should be clarified, the lead is Rozita Razavi not Dosch, who’s also involved. (Razavi is the lead author, but is a student, Dosch appears to be the mentor.) It’s called TRPV1+ Sensory Neurons Control Beta cell stress and Islet Inflammation in Autoimmune Diabetes, Cell 127, 1123-1135, December 15, 2006. Third, the paper doesn’t, as Nick states, “suggest that an 'activating-beta-cell-diet' / DDP can actually reactivate a Diabetic's beta-cells”. The word “diet” doesn’t appear even once in the 13 page paper. Nor does your newly coined word, “DDP”. They’re talking about neural connectivity. This is what is so frustrating when I read your posts! The paper is great! So was the other one you referred me to. BUT, you’re connecting the dots between planets in different solar systems!
If you really want to get my attention, write to Rozita Razavi and Dosch (rozy.razavidrakhshi@utoronto.ca) with your HYPO-theory and report back on what is said in response. Then I’ll listen. Until then, can anyone say: “capsaicin”? (There's lots of press on this. Google Rozita Razavi to learn more...)
Kelly
Reply to this
Kelly........Nicholas and Birdbeak are one and the same person. The symptomology of OC Disorder w/underlying psychosis is clearly seen.
Reply to this
BetterCell,
That thought had occurred to me. Are you serious? I was thinking they should get a room.
Kelly
Reply to this
.
www.tinyurl.com/2w7gp9
.
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Reply to this
Hi Sarah (part 1 of 2),
You say "--I did find an newsclip based on a Swedish study that links higher glucose in non-diabetics with an increased risk of (some types of) cancer. It was in the latest issue of Diabetes Dialogue. I will write out the clip for you if you like.--"
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-827261
That would be great, please do so asap AND please discuss your interpretation of Nick Gracey's interpretation that un-drug-treated T2 diabetics are 'cancer-resistant' and healthier than T0 / non-diabetics (and that is one reason why a T1 should seek to 'convert/upgrade' to a T2 like Halley Berry may have done) --
http://www.thediabetesblog.com/2007/03/26/high-blood-sugar-increases-cancer-risk/#c4198120
As predicted by Gracey in March 2007 and suggested by Ristow in October 2007 -- it appears that the glucose tolerance test 'GTT' is very dangerous and may be causing the 'intolerable damage', by too RAPID blood glucose RAISING, which glucose insulin resistance 'GIR' protects against in an un-drug-treated T2 diabetic (who can choose to be fat or slim as a lifestyle choice).
http://www.cellmetabolism.org/content/article/abstract?uid=PIIS1550413107002562
Why do you think that the maximum recommended 'breakfast-dose' was reduced from 100g to 75g since 1975? Gracey calls this "Relative-HYPERglycemia-Distress" (RHRD) and refers repeatedly to Swanson's April 2007 research for support.
http://en.wikipedia.org/wiki/Glucose_tolerance_test
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-826745
http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=17404617
The apparent dangers of the glucose tolerance test may be one of the driving forces behind Halle Berry's post-2004 promotion of the far 'less invasive' FPG test -- "A simple Fasting Plasma Glucose (FPG) Test at your doctor's office is all it takes to determine whether or not you are living with diabetes; a fasting glucose level of 126 mg/dL or above (confirmed by a second test) means you have diabetes."
http://thyroid.about.com/b/2004/07/08/halle-berry-says-know-your-diabetes-risk.htm
Reply to this
Hi Sarah (part 2 of 2),
You say "-- I believe you have been asking here for more information on this topic. I also suggest you contact the Expert Team at http://www.childrenwithdiabetes.com if you have not already done so. To good health and happiness --"
http://alliesvoice.com/2008/02/11/allies-voice-the-truth-about-diabulemia.aspx#comment-827261
As regards the opposite, to RHRD, and more common scenario, which Gracey calls "Relative-HYPOglycemia-Distress" (RHOD), please note the very recent February 2008 'ACCORD' research report suggesting the dangers of RHOD, as predicted Gracey's repeated published comments (since March 2007), in regard to the relative starvation of brain/nerve tissue by too RAPID blood glucose LOWERING -- of what is "Relative-NormoGlycemia" (RNG) in the average T2 diabetic. It is reasonable to expect these results to be equally relevant to all T1 diabetics with an above-average RNG.
http://www.nih.gov/news/pr/feb2003/nhlbi-20.htm
http://public.nhlbi.nih.gov/newsroom/home/GetPressRelease.aspx?id=2551
Please note that I always have your best health interests at heart. If your beliefs are challenged by my comments -- please recognize that it is your beliefs that are perceiving what you have called "attack" and that you are NOT your beliefs -- because beliefs can change in an instant -- but you will still be there.
Whether it is the truth about diabulimia or the truth about the Gracey HYPO-thesis (www.HYPO-thesis.com). The truth is more sustainable than belief.
Much love, Mollie.
Reply to this
.
A BLUE SKY >
CAUSE OR EFFECT OF
A SUNNY DAY?
> 0307 www.tinyurl.com/2njjl7 [Par.Stattin@urologi.umu.se]
CHRONIC MINOR HYPERGLYCEMIA >
CAUSE OR EFFECT OF CHRONIC
Relative-HYPOglycemia-DISTRESS?
> 0138 http://tinyurl.com/yvsh3b [Michael Somogyi]
> 0307 www.tinyurl.com/3djqak
…Warm thanks & Adrenalin Love
Nick Gracey, BSc(Hons) Medical Biochemistry, Birmingham University, UK, WATerian (C) WED.13.FEB.2008 @ 21:23hrs c/o DiabetesHealth.com & www.HYPO-thesis.com
.
"The Gracey HYPO-thesis" for the CAUSE & CURE of diabetes... www.tinyurl.com/32z33w
CURE auto-immunity [100pc Fresh Organic Raw Liquidiet]... www.tinyurl.com/3cw8eu
CURE diabetes [Relative-NormoGlycemia (RNG)]... www.tinyurl.com/2guhfd
CURED diabetes [Relative-HYPOglycemia-Distress (RHOD)]... www.tinyurl.com/yno298
PREVENT ... HYPOglycemia-Unawareness (HOU)... www.tinyurl.com/2y3zpq
PREVENT ... Relative-HYPERglycemia-Distress (RHRD)... www.tinyurl.com/ynpp4g
PROVIDE ... Relative-NormoGlycemia (RNG)... www.tinyurl.com/3bcn7j
Eat not less but less OFTEN... www.tinyurl.com/299t3f
Eating less OFTEN is profoundly more healthy than eating less... www.tinyurl.com/ys63gk
Eating too OFTEN sustains & CAUSES all diabetes... www.tinyurl.com/2j7p3t
PROTECT from HYPERglycemia-Dehydration-Coma (HRDC)... www.tinyurl.com/2mcyx6 &
...from HYPOglycemia-Distress-coma (HODC) ... FOR Liquidiet... www.tinyurl.com/2ohk2a
Diabetes is not a disease ... www.tinyurl.com/2uxb99 ... diabetes is the CURE...
...for ... Relative-HYPOglycemia-Distress (RHOD)... www.tinyurl.com/36qxn3
Eating-less-OFTEN-Fasting-more-OFTEN-Loving-more-OFTEN
http://www.DiabetesHealth.com/read/2007/11/29/5564.html#comments
AdrenaLINE ... www.tinyurl.com/29kvda ... "I-Fast-Every-23hours-45minutes-OrMore"
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Another atrocious article victimizing women dealing with diabulimia: http://www.usnews.com/blogs/on-medicine/2008/02/27/diabulimia--a-young-diabetics-eating-disorder.html
Ovidio Bermudez says a condition like “diabulemia” is directly related to a “loss of perspective”. The genetically modified synthetic drug these women are resisting causes them to develop a weakened sense of thought – can you blame them for resisting it?
These young women are resisting the suppression of GENETICALLY MODIFIED insulins. The person with diabetes is NOT the problem. The company forcing a GENETICALLY MODIFIED hormone into them is the problem. Doctors must realize that some of the insulins simply DO NOT feel right to people with diabetes. The crime of the story of “diabulemia” is that the lack of natural insulin (pig and beef) have spurred this phenomenon. This was a business decision – not a QUALIITY OF LIFE issue. It’s business, nothing more.
I’m disappointed that a reporter, once again, has missed the facts completely. ANALYZE the “forms” of insulin sold to people with diabetes. You CANNOT find ONE available that acts in the same way true vertebrate insulin works. Amino acid sequence, lipophilic nature, equivocal penetration and absorption rates are ALL CRITICAL ELEMENTS for allowing stabilized blood glucose. These insulins DO NOT work in the same manner as natural vertebrate insulin!
The explosion of “diabulemia” in the last 30 years is COINCIDENTAL to the introduction of the first biosynthetic hormone (insulin) in 1983. Check your facts. Find the statistic that shows 1 in 3 women with Type 1 diabetes had “diabulemia” before 1983. You won’t find it. Based on your FACT CHECKING for the publication of this story – I doubt you’ll look at all.
The insulins FORCED onto diabetics nowadays LOOK NOTHING LIKE NATURAL VERTEBRATE INSULINS produced by humans, cows or pigs. Why are you shamefully blaming the victims here? The pursuit of corporate greed has imprisoned these people. And here you are – blaming THEM for the decisions made by BIG PHARMA. Have you no shame?
Stop blaming patients for trying to compensate the compromised quality of the hormone they need to survive. No drug company has been willing to accept the repercussions for the decisions they’ve made, which have harmfully impacted the lives of people who are a captive audience. If Big Pharma cared so much – they never would have guinea pigged the first SYNTHETIC and GENETICALLY MODIFIED HORMONE on people with diabetes. But look what’s happened, as a result.
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Excellent post Allie. To be honest, I don't know if Diabulima is a result of GM insulin or the media promoting skinny celebs. Or the processed foods being promoted that's got even T1's packing on the pounds.
But I can certainly agree that there should be a choice for people who do not want GM insulin. And people who say they feel "worse" on GM insulin or have increased complications they feel are linked to GM insulin should certainly be taken seriously. Too often, these claims are dismissed.
I know that it is very easy to get pig thyroid hormone, since I take it. The reason is because thyroid hormone (synthetic or pig) is dirt cheap. No money to be made. Usually $11 for 1 months supply. While some people do worse on pig thyroid than Synthroid, it's great that the *choice* is there for people.
There is obviously much more money to be made of of GM insulin, and it's sad that patients have had their rights taken from them.
While you can get pig insulin in Canada, it's sad that people are not given that choice. From the day a T1 is diagnosed, they are give a choice between Humalog and NovoRapid, and Lantus and Levemir.
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So now I know the truth about diabulemia. I have to admit this is a pretty sad truth and no matter how hard I try I cannot understand your entire pain. You need real and efficient help, you need to get over this, but I guess you already know that...
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“Remember, you can’t fight what you can’t see.” That quote comes from your site – and I agree 100%. In order for you to understand an unfortunate marketing ploy disregarding the safety of people with insulin-dependent diabetes – you must open your eyes. Why don’t you learn a thing or two about endogenous insulin and genetically modified insulin analogues? When you’re ready – come back and share what you’ve learned! You’ve got A LOT to cover – we’ll wait for you!
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